Kidney pain

[Lunablu]

First of all: I'm not sure whether this is the right place for this question. If not so: could someone move it to the right place? Thanks!!

Eight years ago I had a kidney infection which would hurt. At the time I had blood in my urine and my doctor thought it was an infection due to a kidneystone. She gave me antibiotics and the advise to drink a lot. After that there never was any blood in my urine no more. I did experience severe kidney pain once more, but I took rest, drank a lot and it went away without antibiotics. But through it all and throuhg all the years that followed I kept keeping kidney pain. Not bad, but lingering.

Since last Summer the pain is gone, but not soon after I was diagnosed with kidney failure: my kidneys are completely shrunken and not working anymore. They don't really know why, the kidneys are too fulnerable to take a punction. So they guess that the infection 8 years ago is a start or a first symptom of my kidney disease. They don't treat the disease since they don't know what it is.

Last week the kidney pain came back. In my blood there are no signs of infections, I have no fever or anything, just the pain. It is not that bad, but if I'd push on my stomach or back the pain is really bad (so I don't push  )
The nurse said that she never heard of anyone having kidney pain and since there is no infection there is not really anything we can do. If I keep having this pain they will plan an echo, but again, they don't think it will show anything.. The doctor did see me last week and thought nothing of it, but it could be bowl obstruction, so the last five days I used laxation three times a day, but the only thing that gave me was diarreah

Does this all sound familiar to anyone maybe?

[Michael Murphy]

For years I had off and on kidney pain with occasional what I thought to be kidney stones.  It turned out to br PKD polycistic kidney disease.  What I thought was stones were cysts that I was passing.  I don't know if it's the same but the mistake I made was not catching a cyst and taking it in for a biopsy.

[Lunablu]

Hi Michael
Thanks for your answer! It sounds like it was very painful! I hope you're not experiencing it anymore

I think I don't have cysts in my kidneys, the echo showed none and my kidneys were really small, shrunken, I've never had stones or other objects passing.. I don't know whether that rules out cysts though...

[kristina]

Hello,
Through many years (since 1971) I experienced a sort of "dull" kidney pain on-and-off on one side or the other,
but I was always informed by medics (especially by nephrologists) that kidney pain does not exist
and they always told me, that they had never come across "it" ...
Fortunately I am quite enquirious and I have researched very much and communicated over the years,
including communicating with many other patients at the nephrologists waiting-room
and because of that, I knew from a very early age, that almost everyone with kidney issues
experiences some dull pain ih the kdiney region ...
... Unfortunately I could never really find out why that is so and unfortunately pain-killers were never an option,
because my fragile kidney-function had to be protected at all times...
... But it has always helped me (whilst pre-dialysis) to take a hot (not too hot) bath to ease the kidney pain,
or to lie down, take a rest and put a warm (not too hot) water-bottle at the spot...
Fortunately since starting with dialysis I have hardly experienced anymore this kidney pain...
... But there again, the answer to that might be
that there is hardly anything left of my kidneys because they have shrunken so much ...
I wish you all the best and good luck,
Kristina.