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Author Topic: NxStage in a Camper  (Read 3828 times)
KatieV
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« on: July 11, 2013, 10:19:11 AM »
Next week, I am going on a camping trip with my husband's family.  Most everyone will be staying in tents, but my husband and I bought a small camper last year.  It will be our first time using it so I'm looking for some advice:

Has any done NxStage in a camper?  Besides my normal dialysis supplies, is there anything that I need or would be greatly helpful that I might not think of?  We will have electric and water (using premixed bags, of course) and can dump our tanks. 

I'm making lots of lists and checking them twice, but I'm scared I'm going to miss something very important.   
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March 2007 - Brother diagnosed with ESRD, started dialysis 3 days later
April 2007 - Myself and sister also diagnosed with Senior-Loken Syndrome (Juvenile Nephronophthisis and Retintis Pigmentosa)

Since then, I've tried PD three times unsuccessfully, done In-Center hemo, NxStage short daily, Nocturnal NxStage, and had two transplants.  Currently doing NxStage short daily while waiting for a third transplant.

Married Sept. 2011 to my wonderful husband, James, who jumped into NxStage training only 51 days after our wedding!
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PatDowns
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Celebrating 60th B'Day. 12/26/15
« Reply #1 on: July 11, 2013, 11:23:27 AM »
Read this previous thread:  http://ihatedialysis.com/forum/index.php?topic=23230.0

If you have more questions, I'm sure the IHD members who responded would help you.  Just send them PMs.

Have fun!
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: July 11, 2013, 06:59:00 PM »
Oh wow Katie, can we go with you guys?  All you need is electricity from a true power source.  Carry an extension cord and plug into a 110 outlet, and you will be good to go.  When we went to Florida in 2011, we stayed in a trailor like home that had a power source.  It was dedicated, so no voltage or wattage problems, like plug in your home.

Other than hanging bags of course, just carry the supplies needed with a few extra's in case.  Enjoy yall.  You are going to have a blast.   :bandance; :bandance; :yahoo; :yahoo;
 Give us an update on your adventure.  You guys deserve this get away!!!   :wine;

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
willowtreewren
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My two beautifull granddaughters

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« Reply #3 on: July 12, 2013, 06:54:43 AM »
Katie, we went camping many times in a little hybrid. What we did is run a line straight to a blue thunder tank. That made it easy to empty after treatment was done. On our first trip we forgot a tourniquet and had to improvise!  :urcrazy;

We found that the placement of the NxStage and the POLE was a bit tricky. Over time we worked out the best logistics and spent up to a week camping. That is the beauty of NxStage.

Have a great time.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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