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Author Topic: How would you handle this ?  (Read 1603 times)
brenda seal
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« on: June 07, 2013, 07:27:39 AM »

From what I understand from reading the boards here , the health system is very different here in Australia . The dialysis centres are attached to large hospitals rather than being privately operated . Laurie receives his treatment at  large teaching hospital which is about 20 kilometres  from home . Our local hospital has a smaller dialysis centre but they only accept patients who can walk in and walk out and who are otherwise stable , also they only have chairs . Up to now , Laurie is still not walking and cannot sit in a chair for four hours .
This afternoon someone rang from his centre and said due to the large number of inpatients tomorrow requiring dialysis Laurie should go to another centre - one more than 40kms from home for his treatment . Laurie was only discharged from hospital on Tuesday night after a 12 day admission and is still very weak , he has a PICC line and is still on antibiotics via a 24 hour Baxter infusor . The ambulatory care nurses are coming to the house on non-dialysis days to change the infusor and they do it at dialysis on the days he is there . On Thursday a nurse from the renal ward came down to dialysis and held a mini in-service to show the dialysis nurses how to change the infusor .
Laurie explained all this and refused to go to the other hospital , they argued the point but in the end he got his way . The problem is now he feels terrible and thinks they will think badly of him , He has always cooperated with their requests before , even when they have changed his shift with only 20 minutes notice .
Surely if someone bothered to read his notes they would have realized there was someone more suitable to change centres .
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boswife
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us and fam easter 2013

« Reply #1 on: June 07, 2013, 10:55:16 AM »

If i understand correctly, The nurses at 'his' dialysis center have been trained to do a particular job, so he needs to go there, and yes, there has to be someone else more suited to do a temporary move.  I know how he probably feels about 'getting his way' because though i will fight for my 'way' on things like this, i always worry about retaliation, BUT.,,,,,,,,,,, in these situations, you only get your way because your right and we have never seen further objections to any particular situation.  I would hope you could stick with your usual place for D,  as without training, they may just say 'no can do' and then you have another situation :(  I wish you well... This is hard  :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sydnee
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« Reply #2 on: June 07, 2013, 01:32:42 PM »

If Laurie convinced the Hospital he needs to stay at "his dialysis unit" then he made valid points they could not refute. He did the right thing for you both. although I'm in America I would guess the person making the decision to have him move was not the people that treat him but some administrator. The person probably didn't even look at his chart. So there shouldn't be any "bad feelings" over this. 
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
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monrein
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« Reply #3 on: June 07, 2013, 03:28:17 PM »

I would address the potential issue of bad feelings by going at it head on.  I'd talk to the charge nurse or manager or whatever you call her/him there and explain why I felt that I needed to refuse this request although I generally try to be as cooperative as possible.  I doubt there are feelings on their part but it never hurts to let staff know that while you understand the complexities of scheduling issues that they deal with every day sometimes you have to put your needs first.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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