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Author Topic: Bad Monday  (Read 2259 times)
BobN
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« on: May 08, 2013, 08:27:34 AM »

http://www.bobnortham.com/whats-new.html
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: May 08, 2013, 10:32:12 AM »

I feel for you , Bob! I'm on 4 different antibiotics (yes, you read that correctly). And despite the complicated schedule along with appropriate probiotics at the correct times, my gut is constantly complaining.

At least you have another 5 years to wait for another colonoscopy.  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Angiepkd
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« Reply #2 on: May 08, 2013, 12:48:57 PM »

Getting ready for my first colonoscopy.  Sounds like loads of fun. I can't wait! :bandance;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
big777bill
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« Reply #3 on: May 08, 2013, 05:32:25 PM »

 I'm scheduled for one in 2 weeks and I've been dreading it. :sir ken;
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
cattlekid
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« Reply #4 on: May 08, 2013, 06:10:57 PM »

Okay folks, time for my colonoscopy prep lecture.  I had my first colonoscopy 25 years ago and I am now a member of the every year club.  At the ripe old age of 42, I have had at least eight colonscopies that I can remember and probably more before that.  So here goes:

Here is your supply list:
whatever prep your doctor prescribes
SOFT toilet paper, even if you like the sandpaper stuff for every day, believe me, you want the soft stuff for this endeavor
a plastic cup (like the proverbial Red Solo Cup) - you will never want to see that cup again
a Sharpie marker
lots of clear liquids, 7up, sprite whatever floats your boat
popsicles (but no red ones!)
broths (you're gonna want to feel like you ate something with a little salt)
lots of reading material or access to the Internet in your bathroom

Here's the steps:

1.  Make the prep WAY in advance.  Get it as COLD as possible.  Ask your doctor if you can add Jello powder to the prep intsead of the packets they provide.  I reserve peach Jello for colonoscopy prep and never touch the stuff the rest of the year.
2.  Sorry, but there's math involved.  Figure out how much prep you have to drink and when you start and when you have to end.  Divide the number of ounces by the number of hours and divide that result by four.  That's the amount that you have to drink every 15 minutes.  Mark that line on your Red Solo Cup. 
3.  Get your chaser ready.  I prefer 7up.
4.  Stock your bathroom with your reading material and TP. 
5.  At the appointed time, channel your inner barfly and start chugging from the Red Solo Cup with your chaser.  Set your timer for 15 minutes and don't think about it until the timer goes off.
6.  Repeat step 5 until you get through the prep.  Somewhere around glass number 6, you might start having to have someone bring it to you in the loo in order to keep on schedule.  Your milage may vary.

After you get through the prep for the day, reward yourself with a lovely dinner of broth with a popsicle for dessert.

It sucks, but remember....the better the prep, the less chance of having to do it again!   :puke;
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Angiepkd
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« Reply #5 on: May 08, 2013, 06:54:50 PM »

Thanks, cattlekid!  I will take all of your advice, as you seem to have it down to a science lol!  The things we learn thanks to illness.  :thx;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Riki
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« Reply #6 on: May 08, 2013, 09:52:55 PM »

I feel for you guys.  I will probably be in need for another one sooner or later, but I haven't actually had one since 2006 or so.  I also believe that the colonoscopy prep, Go Lightly, is a form of torture that should be banned by the Geneva Convention.

My best friend went through this a month or so ago and I kept her company through the prep stage (virtually, as there is 800 miles and an international border between us).  After it was all over, I asked her how she felt, and she said she was clean as a whistle. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Jean
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« Reply #7 on: May 09, 2013, 01:18:40 AM »

Having just had one of those wonderful tests, my last one I do believe, I have to pass on my one little hint. I drank my prep thru a straw. Some how that seemed as if not as much of the prep actually comes near your taste buds and you have less chance of gagging and losing the whole thing. It worked for me.
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One day at a time, thats all I can do.
kit78
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« Reply #8 on: May 09, 2013, 08:57:26 AM »

How do you drink all that if you are fluid restricted to 4 cups of liquid a day?  Just curious! LOL Me...go without my ice...no way! LOL
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
jeannea
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« Reply #9 on: May 09, 2013, 10:20:45 AM »

You drink it while ignoring your fluid restrictions. Your doctor wants you to do it. And you will NOT retain that liquid anyway. It's not a problem.
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Riki
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« Reply #10 on: May 09, 2013, 10:26:38 AM »

yeah.  There's no way you're going to retain that liquid.  It ALL comes back out, and then some..
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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