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Author Topic: Hello Everyone  (Read 1511 times)
Dragonfly
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« on: June 09, 2013, 05:11:57 PM »
Sorry I haven't been on for awhile, the after sickness from dialysis has calm down some and the lupus has taken over, but it is worse than the dialysis. I get sick at the center now, I get aches and pains and really chilly, so chilly I shake, if it weren't for the sides of the chair I would fall out. With my lupus acting up my counts are bad, my hemoglobin was down to 8.0, my potassium was up to 6 and my phosphorus was high also but can't remember the number. Plus I have some other stuff going on that has been driving me crazy and I had to start taking my xanax twice a day and thinking about increasing the amount.
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
Angiepkd
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« Reply #1 on: June 09, 2013, 08:03:38 PM »
Sorry to hear you are struggling!  Keep an eye on the shivering.  It can be a sign of infection.  Hope things settle down for you and you feel better soon!  Keep pushing for answers from your health care team until they figure out how to help you.  It can be so depressing to feel lousy all the time.   :cuddle;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: June 09, 2013, 08:39:32 PM »
So Sorry Dragonfly.  Hoping & praying things get better with time.  Plug away at it gal, I know it must be a daily struggle for you!

 :grouphug; &   :pray; for you,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
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