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Author Topic: Dialysis Treatment Changes  (Read 1873 times)
kitkatz
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« on: May 12, 2013, 12:39:50 AM »

So far the doctor at my Davita center wants to change:

Sodium use to none.  It took three treatments for me to prove to them that was not going to work for me. 14 and a half years on dialysis using sodium from almost year 2 because I cramp in the middle of treatment with out it. My tech took me off it and I promptly crashed and cramped on him int he middle of treatment three times.  The sodium is back on my machine for me so far.

Benadryl to no one.  They claim we get addicted to it. Benadryl helps block all of the noise I hear all night long in the dialysis center.  Without it I will lose my freaking mind! Watch me.  It will beinteresting when I hve had enough of the low TV that is on without headphones, and the machine that goes squeaky squawky all night long in my ear.  With the drugs I can at least get the brain to relax and tune it all out.

No more button holes. Seem buttonholes are causing more infection in center than regular sticks. I will discuss it with my surgeon before we start sticking the revamped fistula in a few weeks.

I looked at my tech and said, it looks like the doc and I are not going to see eye to eye on a few things, huh?  He laughed.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
iKAZ3D
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06/08/2013

« Reply #1 on: May 12, 2013, 11:35:41 AM »

So far the doctor at my Davita center wants to change:

Sodium use to none.  It took three treatments for me to prove to them that was not going to work for me. 14 and a half years on dialysis using sodium from almost year 2 because I cramp in the middle of treatment with out it. My tech took me off it and I promptly crashed and cramped on him int he middle of treatment three times.  The sodium is back on my machine for me so far.

Benadryl to no one.  They claim we get addicted to it. Benadryl helps block all of the noise I hear all night long in the dialysis center.  Without it I will lose my freaking mind! Watch me.  It will beinteresting when I hve had enough of the low TV that is on without headphones, and the machine that goes squeaky squawky all night long in my ear.  With the drugs I can at least get the brain to relax and tune it all out.

No more button holes. Seem buttonholes are causing more infection in center than regular sticks. I will discuss it with my surgeon before we start sticking the revamped fistula in a few weeks.

I looked at my tech and said, it looks like the doc and I are not going to see eye to eye on a few things, huh?  He laughed.

It's not his position. You need benedryl, you get benedryl. You are the patient, he works on your needs. Your paying him, not the other way around.

Your treatment will be run how it runs best for you, not how it can be best cheaply run.

What an ignorant P.O.S.
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August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
boswife
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us and fam easter 2013

« Reply #2 on: May 12, 2013, 12:23:11 PM »

Ya made me laugh kitkatz... You WILL end up with what ya want, be they do it nice, or not,,, you will prevale :)  I read this to my hubby too.. Pissed him off until i told him you WILL handle it  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
geoffcamp
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« Reply #3 on: May 12, 2013, 02:51:42 PM »

It seems we will all be held hostage by these super companies attempts at catorigizing everyone on dialysis as being exactly the same in attempts to raise profits. I hope your successful at getting what you need and want but we are "captive" to them. Just a number in a database to be analyzed for cost vs benefit analysis.  It's sad but true. They took away Benadryl years ago and prescribed Xanax then they wouldn't write for the Xanax so I've had to find doctors the will. I'm not sure there is much we can do to change, it's like everything else in today's world the walmarts dictate what we get!!  Right down to how many peices of gauze they use. I can't even get in for a full nephrology appointment because Medicare won't pay for anything more than the 5 minute visits I get in the unit!!  CRAZY!!
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
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