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Author Topic: One of Each?  (Read 1675 times)
BobN
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« on: May 14, 2013, 11:51:23 AM »

http://www.bobnortham.com/whats-new.html
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
Riki
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« Reply #1 on: May 14, 2013, 02:40:53 PM »

I do think that they come down hard on the dietary restrictions a bit too much.  I don't really follow the diet, and haven't for a while, but I do follow some simple rules.

1.  Be careful of fluids.  When you go out to eat, and what you order is particularly salty, don't order a drink
2.  Don't go overboard.  Moderation does work.  If there's cheese in your meal, skip the ice cream dessert.
3.  Know your labs.  If your potassium was high in your last labs, don't nosedive into the plate of creamy mashed potatoes

It's mainly common sense.  I eat what I like, and don't take binders, and the dietician knows this.  She came to see me the other day with a chart showing my phosphorus levels for the past year.  It showed it slowly going down until it was below their target levels.  She told me to keep doing whatever it was I was doing.

I will say however, that I'm not a huge eater either.  If I go out to eat, I generally take half of my food home for lunch the next day.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Angiepkd
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« Reply #2 on: May 14, 2013, 07:12:32 PM »

I have just recently begun to loosen up on the dietary restrictions.  Today, I had a small helping of mac 'n cheese.  Oh how I miss cheese!  I am not on binders, but my labs have all been on the low side of the range.  I am not going to go crazy, but would love to have some pizza this weekend.  Hoping my small cheats don't come back to haunt me on my next labs!   I have also been cooking lots of meals from "David's Cookbook" for dialysis patients.  Almost everything I have made has been really good.  Even my hubby likes it.
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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