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Author Topic: iron deficiency  (Read 4267 times)
Capncrunch
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« on: April 02, 2013, 04:56:21 PM »

Hi,

i was wondering anyone who has iron deficiency, and how is it treated? Is it through pills or injection? And how many milligrams in pills or injection? I get mines through injections, but I was wondering if pills would be better.
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MaryD
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« Reply #1 on: April 02, 2013, 05:50:29 PM »

The only times (twice) there has been real concern at my iron levels, I've had infusions.  You sit there with an IV in your arm for hours.  Occasionally I've been put on iron tablets, but I hate them and they are apparently very slow.  Don't know which is worse the iron tablets or the infusion.   >:(
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Angiepkd
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« Reply #2 on: April 02, 2013, 07:06:21 PM »

I am on an iron pill. So far it seems to be working for me, but if it doesn't, I was told I would need IV iron.  From what I understand, the pills aren't as effective as the injectable iron.
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Chris
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« Reply #3 on: April 02, 2013, 09:37:47 PM »

I have had infusion, pills, and recently a small liquid you swallow while in the hospital. I do not remember what dosage I was on while on dialysis, but I am taking OTC dose post transplant.
 
While on dialysis infusions were given first while at the dialysis center and after a few infusions I was taking a prescription. I then was weened off the infusion and took only the pills for a short time. So if your taking plenty of meds already, stay with the injections, less pills to swallow. Of course this depends on insurance and preference.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
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No two day's are the same, are they?
midges
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« Reply #4 on: April 03, 2013, 03:09:21 AM »

I think that the amount of iron you receive is based on how anemic you are. When I began dialysis my hemoglobin was 6, so I got oral ferrous sulfate daily, epogen weekly and iron monthly. I'm off epogen and the supplement right now, but I still get IV iron on a monthly basis. The amount is determined by my previous blood results.
     Ime, ferrous sulfate was really hard on my system. It really upset my stomach so I wanted to get off of it as soon as possible. It is also the least absorbable way to supplement iron. IV has a much better rate of absorption.
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