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Author Topic: It's World Kidney Day and my friend Amy did a radio show.  (Read 1917 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: March 14, 2013, 02:39:17 PM »
My friend Amy, who donated a kidney to a friend's mom she knew on twitter, was interviewed live today on "Positively Speaking Radio."
I heard Amy mention Jenna so I called in to the show and Bill Poett, the host, offered HIS KIDNEY to Jenna. I still have goosebumps! You never know where your miracle will come from!
Here's the show recorded earlier today:
http://www.blogtalkradio.com/positivelyspeakingradio/2013/03/14/amy-donohue--organ-donor
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Riki
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« Reply #1 on: March 14, 2013, 06:34:32 PM »
I was listening, and I started crying when he said that.. What an amazing thing to do.. would be awesome if he were a match
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #2 on: March 14, 2013, 07:49:06 PM »
That's fantastic! I totally flaked on her #kidneychat on twitter last week. We've been corresponding via email. I am in love with her project.

And I am doing a happy dance that he made an offer. I hope things come through for Jenna soon.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
MaryD
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« Reply #3 on: March 14, 2013, 08:03:22 PM »
Made the hair stand up on the back of my neck.  I hope something can come of this.   :2thumbsup;
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MooseMom
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« Reply #4 on: March 14, 2013, 10:02:51 PM »
Oh, wow.  Just...wow!
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okarol
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« Reply #5 on: March 14, 2013, 10:07:25 PM »
He actually already called the transplant team. He is blood type B+ and Jenna is O, but you never know, he might do a swap for her, or he may go on to donate to someone else. This guy is the real deal. It's really inspiring.   :bow;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
BobN
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« Reply #6 on: March 15, 2013, 03:16:05 AM »
Awesome Karol.

Keeping fingers crossed this will work out.
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Bob's Prescription for Living With Dialysis:
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bennyswife
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« Reply #7 on: March 15, 2013, 07:48:34 AM »
Awesome  just Awesome!! :flower;
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #8 on: March 15, 2013, 08:29:38 PM »
I just saw Amy posted that a second person has come forward for Jenna! I am so excited for you both.

And don't forget your pals over here on the East coast and send any extra donors our way  ;)
Logged
Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
cariad
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« Reply #9 on: March 17, 2013, 02:37:03 PM »
Amazing, Karol! Any updates? I am so damn impressed with you, picking up that phone and advocating for Jenna like that. I doubt I would have been able to think straight or speak coherently if this were my child being discussed.

Has he been in contact with you at all? Would you mind if I write him an email about this? Gwyn would like to offer to chat with him, or even meet with him (since he's right here in Santa Barbara apparently!) if he would like to know more about the donation process. As much as I want this for Jenna, you know I'd never pressure the man, I just want to let him know that he's touched even this cynical old transplant veteran. :guitar:
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #10 on: March 17, 2013, 07:47:51 PM »
If I had not listened to it again, I would have no idea what I said, I was crying (again.)
I did hear from Bill Poett on facebook. I thanked him for his offer and he responded:
"If one if my girls was sick I'd pray for the same thing, seems like if I'm going one day ask for something I'd better be willing to give it . Now lets find a match for Jenna!"
The show has been downloaded over 15,000 times. Bill is asking for people to share it, hoping to get 20,000 listens by his birthday next week.
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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