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I Hate Dialysis Message Board
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Dialysis: General Discussion
I wonder
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Topic: I wonder (Read 1869 times)
GoingThere
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I wonder
«
on:
March 13, 2013, 10:03:23 AM »
how many transplanted kidney patients walk around the world not knowing they have some sort of a mild acute kidney rejection that slowly progresses to chronic rejection?
If I would return for a retest on Friday instead on Thursday, they would send me home and creatinine levels up would be officially sign to a dehydration.
But because I came to give blood one day before they did a kidney biopsy and found mild cellular rejection probably "left over" from my original acute rejection.
Sometimes I really feel there is someone watching on me.
I've just completed my 5 pulses of prednisone and my creatinine levels are first time under 2.0. Very happy!
GT
Logged
1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
kit78
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Re: I wonder
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Reply #1 on:
March 13, 2013, 10:33:45 AM »
That's awesome!
Logged
Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December - Back on Transplant list
okarol
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Photo is Jenna - after Disneyland - 1988
Re: I wonder
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Reply #2 on:
March 13, 2013, 12:20:28 PM »
It's true. Jenna's biopsy came back as chronic rejection after a spike up in her creatinine. If it had been caught earlier it might have had better results.
Glad to hear you're doing better!!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Speedy1wrc
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Re: I wonder
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Reply #3 on:
March 13, 2013, 06:29:35 PM »
When each my kidney and pancreas failed the Dr's told me it was due to chronic rejection. Apparently it had been going on for some time, but no one bothered to let me know till they were both shot. The only solace I got was "at least you're still alive".
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Riki
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Re: I wonder
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Reply #4 on:
March 13, 2013, 08:26:51 PM »
I knew my last kidney was rejecting a year before anybody else bothered to look. I had intense pain over the kidney that felt like my insides were turning inside out. Nobody would listen to me. They told me that the pain was all in my head, because they couldn't see anything on ultrasound. I'm thinking that if they had biopsied, they would have found something, but they didn't do that until it was too late to do anything.
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
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