I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 24, 2024, 05:16:20 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: Traveling Tips and Stories
| | |-+  Looking for units in New Jersey and New York
0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Looking for units in New Jersey and New York  (Read 5427 times)
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« on: February 10, 2013, 12:31:06 PM »

I'll be doing a bit of traveling in the next year, first to New York City, and then again to Morristown, NJ.  The New York trip is strictly a pleasure trip, to visit with my friend, Kelly.  i have a unit that I go to, but it's on the lower east side of Manhattan, and where i stay and where Kelly lives is on the upper west side, so I was kind of hoping to find a unit closer.  The other trip is to get my guide dog and train with him/her.  None of that has been put into motion yet, but I was trying to be proactive and look into units there.  Information is not easy to find online, and the one bit of info that I want, if the unit takes travelers, is never listed.  i was wondering if maybe anyone who lives in those areas might be able to point me in another direction to find the information I'm looking for.  There has to be more than one unit in Manhattan that accepts traveling patients.  The last time I was there, there was a couple in from Japan.  The wife, who was the patient, didn't speak a word of English, and the husband had to translate.
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Tío Riñon
Full Member
***
Offline Offline

Posts: 193

« Reply #1 on: February 10, 2013, 01:52:19 PM »

Your clinic should be able to assist you with this request.  Tell your nurse that you need to make a travel request and give them at least a month's notice.  Have the dates you'll be traveling, the address(es) where you'll be staying, and any other relevant information.  They will try to find a location in the area for you.

I've done this for my father a number of times and it has never been a problem.

Good luck!
Logged
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #2 on: February 10, 2013, 03:11:20 PM »

I've done this before.. I have to find the places first, and then they find out if I'm welcome there.. I haven't got any dates yet, for either trip.. we don't have a travel coordinator, so I have to do most of the leg work myself
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."

« Reply #3 on: February 10, 2013, 03:27:39 PM »

Here's a Fresenius directory:
http://www.ultracare-dialysis.com/en/FreseniusMedicalServices/FreseniusMedicalCareDialysisCenters.aspx#search-form

And their travel coordinator:
https://www.ultracare-dialysis.com/travel.aspx?_vsignck&_vsrefdom=patienttravel&gclid=CJiCxLPyrLUCFYdT4AodZmoAqA
 
8)
« Last Edit: February 10, 2013, 04:54:44 PM by Zach » Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #4 on: February 12, 2013, 01:11:44 PM »

I have no problem finding the centres.. it's finding information on them that's the hard part.  A lot of centres won't take traveling patients, and the particular site you have has no information at all, just where they are
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
SugarBear
Full Member
***
Offline Offline

Gender: Male
Posts: 147


« Reply #5 on: February 13, 2013, 05:32:50 PM »

Hi Riki, I live in Manhattan and while there are many centers here, most have a long wait list just for new or transferring patients.  This I believe is the reason why many don't bother with travelers because it becomes a scheduling nightmare when the units are already filled to capacity. 

Rogosin Institute has been building a new facility on Riverside Drive, but I don't know if they have completed construction as of yet. I will try calling a couple of nurses and social workers I know in the area tomorrow to see if there are any options available for you. 
Logged

Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #6 on: February 13, 2013, 06:46:30 PM »

I usually go to the Lower Manhattan Dialysis Center on 34th Street, but it's so far away from where we stay, and since I'm usually on the third shift while there, trying to find a cab at 5pm is a nightmare.  It's why I thought that maybe if I could get into another unit closer to where I stay, maybe it won't be such a pain in the butt to get there.

The last time I was down, I stayed in Newark, and one night I had quite the trek.. we managed to get a cab to Penn Station at 10:30pm.. then got on the train to Newark.. I had a hell of a time just staying awake on the train.. then, we called a car service when we got to Newark, and they just weren't coming and weren't coming, so we decided to walk to the hotel.. it was only 2 blocks, but after 4 hours on D, it felt like I was walking back home to PEI, and not 2 blocks to the hotel..
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
SugarBear
Full Member
***
Offline Offline

Gender: Male
Posts: 147


« Reply #7 on: February 17, 2013, 03:05:57 PM »

Hey Riki,  I don't have much to report back.  Basically I got the same answers that were given here, to use the internet to find units near your visit locations or to try the travel coordinators at Davita and Fresenius.  Good luck with your trip.
Logged

Xbox GT: ShonumShogun

CKD due to FSGS 1999
Drop from Stage 4 to Stage 2 ESRD 2000
ESRD 2005
Started Dialysis September 13, 2006
Short Daily Home Hemo March 2009
Back to In-Center Hemo August 2009 (Too Many Hours)
Nocturnal Home Hemo with Remote Viewers  May 2010
Received Transplant March 1, 2012
Transplant Failed in October 2017
Nocturnal Home Hemo with Remote Viewers December 2017
Riki
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3408


WWW
« Reply #8 on: February 18, 2013, 07:16:24 PM »

I think we're planning on New York in May.  We're usually there during Fleet Week (I do love the sailors. *L*).  I'll probably start bugging the social worker about it around the end of March.  I imagine that I'll be going back to where I went before, it's just a rip roaring pain in the backside to get there and back to the Upper West Side. 

I'm going to email the school in Morristown, NJ about dialysis units in the area, as I'm sure they've had students on dialysis before
Logged

Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #9 on: February 18, 2013, 11:49:37 PM »

Here's a Fresenius directory:
http://www.ultracare-dialysis.com/en/FreseniusMedicalServices/FreseniusMedicalCareDialysisCenters.aspx#search-form

And their travel coordinator:
https://www.ultracare-dialysis.com/travel.aspx?_vsignck&_vsrefdom=patienttravel&gclid=CJiCxLPyrLUCFYdT4AodZmoAqA
 
8)

Have you called or emailed the travel coordinator? They will know locations and services provided.
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!