Million and one Dilemmas and going down hill Fast

Sorry this is long but please read

As some of you may remember I have posted in the past that not only I have kidney failure for the last six years requiring Dialysis but for the last 3 years I have had prostate cancer which has spread to my bones. Fortunately neither condition has been very symptomatic (until Recently) 14.5 haemoglobin and full urine output so no need to take off UF.

Also the bone cancer had not got too much of a hold so no pain. When my PSA started doing big jumps in level about a year ago the oncologist put me on a very strong hormone drug intended to stifle the cancer growths plus prednisolone to counteract the worse side affects of the drug. It has had the effect of causing me heart arrhythmia and a fast heartbeat plus thumping palpitations in my chest during the last hour of my dialysis. After about ten minutes stopping of dialysis heart is back in rhythm.

The only way to stop it was to knock an hour off my dialysis time and do a ridiculously low pump speed. Also since I started the new cancer hormone my HB is slowly dropping so that now I am borderline anemic. I have had two 500ml units of blood on the last three weeks which improved things but I am back down to 9.3. The whole shit for me is that neither the Dialysis doctors or the Oncology team have any idea how to deal which the interaction of the two diseases and the effects the medicines for each condition have on each other. For example if the the sudden loss of hb is down to the cancer in the bones then the cancer docs don't know whether Arenesp it will have any benefit in fact they suggest that it could accelerate the cancer but they don't know for sure. If the hB drop is the natural result of kidney failure then Arenesp could be the answer but because there's no overall expertise for how the two coditions interact nothing much is getting done in decision taking.

I have stopped the hormone treatment because it was compromising the quality of my dialysis and now I am back to my normal dialysis with no problems but the point also is that the hormone treatment wasn't working anyway as I believe it was being dialysed out of my system.
I thought that maybe the hormone (which was also bouncing my BP all over the shop) was causing my drop in hb but after coming off the hormone now for over 3 weeks it is still not rising.

I have agonising back and flank pain which is partly controlled by pain killers but it's worst in the soft tissue between my ribs and hips which could be the onset of PKD pain but could be referred pain from the cancer activity in my ribs. Whats more I'm getting the impression off both the renal and oncology side that its all to complicated to assess and an attitude of palliative care is creeping in. I have never felt so ill in all my life. All I want to do is sleep most of the time. I have no energy or interest in anything very much. I feel that by better expert knowledge the time I have left could perhaps be of better quality than it is now. I am totally losing hope and I am at my wits end. I don't know how many more posts Ill be sending in the future but if and when the inevitable happens my wife Rita will let IHD Know.