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willowtreewren
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« Reply #75 on: December 29, 2012, 10:38:39 AM » |
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Hip hip!!!!!  That IS good news. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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lainiepop
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« Reply #76 on: December 29, 2012, 12:25:01 PM » |
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I am so pleased to read this positive news and pray your Kidney gets better and better!
How are you feeling? You've been through so much emotionally too x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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CebuShan
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« Reply #77 on: December 30, 2012, 08:23:34 PM » |
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Wow! Just when we had given up hope! You go, Chuck! |
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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cassandra
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« Reply #78 on: December 31, 2012, 01:52:40 PM » |
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Great to read your better news. Sounds very promising,
May the good news continue in the new year!!!
Lots of love, and strength Cas
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I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
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okarol
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« Reply #79 on: January 01, 2013, 02:30:28 AM » |
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Very good news! GO CHUCK!  |
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Darthvadar
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« Reply #80 on: January 01, 2013, 02:37:39 AM » |
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Great news, Uros... You and Chuck will make a lovely couple!.... Happy New Year... Darth... |
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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RichardMEL
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« Reply #81 on: January 02, 2013, 09:35:14 PM » |
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yes wow that is unexpected as it seemed like it was all over for Chuck... but hopefully this IS a happy new year for you indeed GT!!
fingers crossed...
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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boswife
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« Reply #82 on: January 03, 2013, 08:24:26 PM » |
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Sure rooten for you and sayen prayers that all will turn out just great for you. I wish you so much goodness and a beautiful life... 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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Lexxtech18
Full Member
 Offline
Gender: 
Posts: 224
Be good to yourself when nobody else will.
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« Reply #83 on: January 03, 2013, 09:15:37 PM » |
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Glad things are looking up for you!! Did they have to do the OKT3? I had that when my first tx rejected. Horrible, horrible stuff. Made me the sickest I've ever been (even temporary blindness) but it worked like a charm. I'm wishing the best for you and your tough little kidney!! |
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
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GoingThere
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« Reply #84 on: January 05, 2013, 11:29:17 PM » |
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After 10 PE and IVIG my creatinine level is stable at 2.4 (BUN is almost normal). I'm not satisfied with the current level, but doctors keep telling me that creatinine will drop slowly in the future. My Tx is a rollercoaster. I can hardly wait to go home in start riding my bike.  Lexxtech - no, I didn't get OKT3, I got ATG. Also very strong medicine. I got fever and headache. What do you think about my creatinine level? Uros |
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
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jeannea
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« Reply #85 on: January 07, 2013, 08:10:47 AM » |
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Your creatinine level isn't perfect but it's not that bad. Lots of people out there have that level, many don't even know it. If you feel ok and your docs aren't upset, don't worry too much. You already try to stay healthy. Just keep doing that.
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RichardMEL
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« Reply #86 on: January 07, 2013, 11:12:51 PM » |
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yes mine took a few months to get down to the1.4-1.5 level it is at now. give it time. Every day off D is a bonus right? Try to not be impatient with it.. hopefully it will get under 2 and all will be good |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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MsMia
Newbie
Offline
Gender:
Posts: 16
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« Reply #87 on: January 16, 2013, 11:44:38 PM » |
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Congratulations on your transplant! I also have IGA, I got a 4/6 match kidney from my brother in 2006 and it took about a month for my creatin to get from 2.1 to 0.9 My doctors were not worried.  |
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GoingThere
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« Reply #88 on: January 18, 2013, 05:39:19 AM » |
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I had my first checkup yesterday. Creatinine went a little bit down: 2.3 and Hb is normal so I won't need EPO shots. Yupppiiiiiii  |
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
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Rivy
Jr. Member
Offline
Gender: 
Posts: 62
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« Reply #89 on: January 18, 2013, 08:55:54 AM » |
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fingers crossed! The best of luck! I wish I was called for one..I have a feeling that they go through the whole kidney list then start at the beginning so everyone on the kidney list gets called at least once then they start back at the top...? umm...Your lucky... Rivy
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boswife
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« Reply #90 on: January 18, 2013, 07:09:10 PM » |
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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Lexxtech18
Full Member
Offline
Gender:
Posts: 224
Be good to yourself when nobody else will.
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« Reply #91 on: January 19, 2013, 05:07:06 AM » |
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Yay! Things are looking up GT!  |
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
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lainiepop
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« Reply #92 on: January 19, 2013, 09:32:56 AM » |
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Am so glad things are looking up after all youve been through....praying that kidney gets better and better!! Xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
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MaryJoe
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« Reply #93 on: January 22, 2013, 09:07:32 AM » |
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No Epo, something more to celebrate! I'm so happy things are turning around for you, I know the treatments have been rough. Here's to nothing but good news from now on!  |
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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I Hate Dialysis Message Board
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