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Author Topic: been a while, not good  (Read 7742 times)
texasstyle
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« Reply #25 on: September 29, 2012, 11:25:47 AM »

thanks everyone. Each reply is meaning and I truly feel the comfort here. My mind though, is ready to blow. You just get tired of being nice all the freaking time and accepting the "abuse".
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caregiver to husband using in-center dialysis 4 years
PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #26 on: September 29, 2012, 11:43:00 AM »

thanks everyone. Each reply is meaning and I truly feel the comfort here. My mind though, is ready to blow. You just get tired of being nice all the freaking time and accepting the "abuse".

I've kept up with your situation for quite awhile.  Abuse does not need to be put in quote marks because that exactly describes your husband's actions - towards you.  Please seek support and help for yourself.

CODA meetings are free to attend - http://www.coda.org/index.php

Offers help on a sliding scale fee - http://www.womenstherapycenter.org/
« Last Edit: October 01, 2012, 05:18:11 AM by PatDowns » Logged

Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

Dialysis prescription:
Sun-Tue-Thur - 6 hours per treatment
Dialysate flow (Qd) - 600 
Blood pump speed(Qb) - 315
Fresenius Optiflux200 NR filter - NO REUSE
Fresenius 2008 K2 dialysis machine
billyM
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« Reply #27 on: September 29, 2012, 01:46:42 PM »

thanks everyone. Each reply is meaning and I truly feel the comfort here. My mind though, is ready to blow. You just get tired of being nice all the freaking time and accepting the "abuse".

keep the chin up . i know you understand how hard it seems as a sufferer , cos youve been there and saw it , and you couldnt be more supportive , and you feel like head butting a wall right now.

content yourself with the knowledge youve done everything in your power to help .

best wishes

 

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RichardMEL
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« Reply #28 on: October 01, 2012, 12:51:49 AM »

TS sweetie ... I have been reading and out here... honestly though I just did not know what to say/write at this point that wouldn't be a rehash of all the previous comments over the past few years.

Then I thought you need to know we love and support you and yes, the abuse he's doing to himself is also abusing YOU - just not in an obvious or direct way like getting drunk and belting you or stuff like that. I can't imagine how you've managed to stick through this so much - you are the personification of a saint in many ways, as difficult as that may seem to believe, because many would have just upped and left Mike to his own devices and choices long ago. You are not only true to your vows, but true to your *love* and that is a special thing. I wish somehow deep down Mike truly understands how special you are, and rare.

I worry what is happening now, not just with Mike's seeming everlasting torture (meant in a number of ways) but YOU and your emotional state.

I really know there's nothing much I can say or write with everything you are dealing with, so I won't try anymore... I just send, like many others here, big long hugs and support thoughts.

Since i'll eb a whole lot closer in a few days maybe my vibes will get through a bit more and help to give YOU some strength. You have so much yourself, but I know you can use all the support you can get. xoxo
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Whamo
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« Reply #29 on: October 01, 2012, 06:43:05 AM »

I went without dialysis for four days when my first fistula blew out.  They gave me something to keep down the potassium.  When I got a new catheter and I did get dialysis it was gnarly.  I hope things improve for you and yours.   :grouphug;
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cariad
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What's past is prologue

« Reply #30 on: October 01, 2012, 12:30:14 PM »

TS, dearest, he's killing himself and forcing you to watch. Do what you have to do to come to terms with the situation and let him go. I doubt it will be long now so look after yourself and detach. Sorry he's chosen this path. Simply awful. :( Hugs.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
lmunchkin
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"There Is No Place Like Home!"

« Reply #31 on: October 01, 2012, 04:53:05 PM »

If I may add, TS, this is not your fault, so please, do not blame yourself! Lord knows, your'e doing the best you can, plain & simple! 

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
RichardMEL
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« Reply #32 on: October 01, 2012, 11:59:38 PM »

Times like this I actually wish there was a "like" button on some posts on this board, like I've seen on some others....

agree totally that it's NOT TS's fault and you need to look after yourself - mind, body and soul.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
AguynamedKim
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« Reply #33 on: January 27, 2013, 07:50:01 PM »

I don't know if I missed another post but I think this was the last one by TS for a while.  Has anyone heard from her?  Reading another post by a caregivers struggles made me think of her.  I hope she's doing alright.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #34 on: January 28, 2013, 11:39:33 AM »

I have PM'd her, so hopefully she will reply.  Been praying for Mike too, it is a tough thing for him also!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #35 on: January 28, 2013, 12:41:28 PM »

TS is having some health issues herself. She's a trooper, though.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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