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Author Topic: Shooting with all they have  (Read 1898 times)
GoingThere
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« on: December 21, 2012, 05:48:55 AM »
Well, the situation is that they try to reverse acute kidney rejection. I've already gotten 5x pulses of medrol and 5 IVIG.
Result= I'm off dialysis from Sunday cause creatinine level stoped at 4.6 and doesn't going up.

But now the heavy stuff will come: more IVIG+pulses of medrol+plashmapheresis+ATG.

They are pretty sure that they will be able to save my kidney.

I will update you with my progress.

Uros
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: December 21, 2012, 06:00:15 AM »
Oh GoingThere, must be so tough, but does sound a bit positive. I wish you all the luck, and strength in the world.


        :cuddle;


love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
MaryJoe
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« Reply #2 on: December 21, 2012, 06:47:26 AM »
Uros, It sounds like good news, pretty sure is progress!  I hope you won't suffer much from side effects of the drugs they have planned for you, it sounds like a pretty intense course of therapy.  I hope you are able to relax at least a little and enjoy the holidays. :christmastree;
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Rerun
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Going through life tied to a chair!
« Reply #3 on: December 21, 2012, 11:13:13 AM »
Hang in there!

               :pray;
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jeannea
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« Reply #4 on: December 21, 2012, 04:15:34 PM »
Sounds tough but slightly hopeful. I hope it helps.
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sullidog
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« Reply #5 on: December 21, 2012, 04:20:13 PM »
I got the ATG after transplant, I had no side affects and hope you don't either, just make sure they give you a tylenol and benidryl
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
boswife
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us and fam easter 2013
« Reply #6 on: December 21, 2012, 06:11:43 PM »
Im roouten for you and that kidney of yours.   :pray;  :pray; :pray;  :pray;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
kit78
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« Reply #7 on: December 24, 2012, 09:23:17 AM »
Prayers and blessings for your kidney to be fine and healthy!  Hang in there and think positive.
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Inherited PKD from my Mother who died at age 52
2001 Transplant - Blessed...only on list for 4 days
2012 Lost Transplant and had Pneumonia
2012 June - started Dialysis
2012 December -  Back on Transplant list
Joe
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« Reply #8 on: December 24, 2012, 10:39:52 AM »
Keeping thoughts and prayers your way that this settles things down and your kidney recovers.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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