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redrider
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« on: June 17, 2013, 07:03:11 PM »

went to my va. dr. she told I will starting dialysis in to weeks I will meet with the social worker this week to et stings started tried for 2 1/2 years trying to stay off dialysis   is has not sunk in yet........... ??? ???



Edited: Fixed smiley error - okarol/admin
« Last Edit: June 25, 2013, 01:20:54 AM by okarol » Logged
Rerun
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Going through life tied to a chair!

« Reply #1 on: June 17, 2013, 08:14:47 PM »

Stick with us and you will get through this.

I don't know what link you left us.  It didn't work.
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redrider
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« Reply #2 on: June 17, 2013, 08:26:36 PM »

sorry clicked wrong button , not computer smart. :oops;
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Angiepkd
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« Reply #3 on: June 17, 2013, 08:32:56 PM »

Hang in there! The unknown is much worse than actually starting D.  Which modality are you going to use?  I do NxStage home hemo and have had very little trouble.  I feel much better than I did in the months prior to starting.  Once you get into a routine, dialysis becomes a part of your schedule.  Not a part that you will look forward to, but certainly not something that you can't deal with.  Try not to freak out about the whole thing until you experience it for yourself.  I was dreading it so much that the actual procedure was much better than I expected.  I would love to get a transplant sometime in the near future, but can deal with D until that happens.  Hope you find the same to be true for you!  Do your homework on whatever method you choose so you have an idea of what to expect.  This site was so helpful to me in the weeks before I started.  The people here have experience in all types of D and someone is bound to have answers to your questions!   :cuddle;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
redrider
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« Reply #4 on: June 17, 2013, 08:50:28 PM »

i am going to do incenter  for right now i will see later. i think my wifr is more scard then me. once we talk the socaial worker i think we will fill better
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adairpete
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Me and Karl

« Reply #5 on: June 24, 2013, 08:44:46 PM »

I agree with Angiepkd.  The unknown and anticipation is much worse than the actual thing.  Having more information about dialysis and your options will help, too.  Hope your surgery goes well (or has gone well).  You're already off to a good start by coming here.  There are loads of experienced people for whichever modality you're on and it's a great place to just vent. 
 :flower;
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
galvo
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« Reply #6 on: June 24, 2013, 11:07:29 PM »

I started in-centre HD 3and 1/2 years ago. I was around your age, also. A few battles but, overall, I'm going fine. As will you. Good luck and keep us posted. Plenty of knowledge and support here!
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Galvo
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: June 25, 2013, 01:23:44 AM »

Good luck to you! Hopefully all will go well and you will feel better. Get copies of your lab slips so you can understand how you are doing.
My daughter is going to start training for PD in 2 weeks. It's scary but she has been in-center before and looking forward to something different.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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