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Author Topic: Question about Susie (Goofynina)  (Read 2274 times)
Jonndad
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« on: December 11, 2012, 06:08:16 PM »
I have just finished reading many of the posts back in February of 2008 when GoofyNina became ill and passed away.  I'm just bawling like a little kid now and I didn't even know her.  But I could feel the love and the caring from so many of you here at IHD.  This was incredibly sad.  Was it ever determined if the PD she was doing led to the infection that became so bad?  I just don't understand why the Doctors gave up so quickly on her and could not fight the infection.  I'm sorry to ask this but I am just starting dialysis and am scared to death of all of this.  Thank you in advance for any thoughts on this.  John
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kitkatz
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« Reply #1 on: December 11, 2012, 07:27:05 PM »
Suzy had surgery to remove some calcium build up in her abdomen,  she was feeling good and healing, and whammo an infection hit and took her out within days.  I do not think it was PD related, just one of those things.
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Jonndad
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« Reply #2 on: December 11, 2012, 07:47:53 PM »
Thank you for the response.  I wonder what causes calcium deposits in the abdomen in the 1st place?  Like so many things, like you say, it just happened.  So very sad. 
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jbeany
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« Reply #3 on: December 11, 2012, 08:40:31 PM »
The calcium deposits are a symptom of kidney disease.  It's part of having out of control PTH levels for an extended period of time.  Not everyone gets them, thankfully. 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Deanne
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« Reply #4 on: December 12, 2012, 07:52:16 AM »
I don't think it's that they didn't want to fight the infection, I think the problem was that some bacteria are resistant to antibiotics. My impression from the messages here was that the meds didn't work and they ran out of things to try.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Rerun
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« Reply #5 on: December 14, 2012, 01:22:07 PM »
Normal working kidneys balance calcium and phosphorus in the blood.  So when you have ESRD that balance doesn't work anymore.  We are told to take our binders to hold down our phosphorus levels.  When our phos gets high our body wants to make the calcium equal ... or high... too so it will tell your parathyroid to send a harmone (PTH) to go get some calcium out of your bones.  Thus bone disease.  Then there is a problem with calcium deposits.

Both Epoman and Goofynina wished they had taken their binders.  Epoman ended up in a wheel chair because he didn't take his binders like he should have.  The flu or something else got him in the end, but he was in a wheelchair because his hips broke and couldn't heal.

This is information that I have processed on PTH and high levels of Phosphorus.  I'm sure someone can explain it better.
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Jonndad
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« Reply #6 on: December 16, 2012, 08:14:33 AM »
Quote from: Deanne on December 12, 2012, 07:52:16 AM
I don't think it's that they didn't want to fight the infection, I think the problem was that some bacteria are resistant to antibiotics. My impression from the messages here was that the meds didn't work and they ran out of things to try.

This was very helpful.  Thank you so much.
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