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Author Topic: Not a good first try at dialysis clinic  (Read 5387 times)
mamagemini
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It's all me.
« on: August 30, 2012, 09:24:47 PM »
Went yesterday to start and they couldn't get the needle in the top part. My vein is deep and swollen still from the surgery. My arm is BRUISED to hell today. Had to ice it all night last night. So now doc is talking about doing another surgery to get the deep vein up higher, something "trans..." while it heals they want to put in a chest cath to get me started.
My feet and ankles are so swollen they HURT on top. Honestly I feel so lost with all of this. I wish I had a interpreter with me to help me get all this. I just want to sit and cry but I don't...I keep going. They want me to come back tomorrow to try again with the best "sticker" guy there....my arm is sooooooooooo bruised.  ??? ??? ???  If any of you have Instagram I've started posting the pics from this.
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
Rain
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« Reply #1 on: August 31, 2012, 04:59:15 AM »
Mamagemini,

Hang in there.  is it a transposition they want to do?   If they can't get your needles next time you go in demand that you get the chest cath right away,  being swollen an puffy is not fun and its' bad for your heart.

If you need any help deciphering anything please post on IHD , that's what we are here for. And if you don't understand something asked the doctors or nurses again. 
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
justjen321
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« Reply #2 on: August 31, 2012, 09:29:01 AM »
I'd bet it's a transposition. And while it's not fun to have another surgery, in the long run, it WILL make your fistula more functional for you, so you don't have to deal with difficult sticks.

I think if they have trouble, I'd concur that asking for the chest cath is a good, solid plan. That swelling is SO hard on your body, and your heart. My husband started dialysis with a chest cath, and literally was wheeled back in from the surgery for placement to dialysis, so you can get started getting your body clean and out of fluid overload.

It IS scary, and it feels like you'll never figure it all out. You will, honest. There's a LOT of information to digest in the beginning, and you'll not remember it all in the early days. Keep coming here, ask EVERYTHING, and eventually, you'll find yourself spouting all kinds of information and numbers you didn't know you knew. :)
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
mamagemini
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It's all me.
« Reply #3 on: August 31, 2012, 11:03:02 AM »
Well they are going to put int he chest cath. It should be Tuesday or Wednesday. Then right to dialysis. I just feel like I am rushing....I guess I just don't get why the hurry. I'm still working, peeing...I'm tired, sore, nausea, headaches, and swollen but I guess thats all part of the issues?  :'( :'(
Sitting here tearing up because I am worried and scared. The adult in me is saying it will be alright but the little girl is worried. Does that make sense? I know buck up and deal with it, which is what I am doing but I need a moment...
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FSGS/Nephrotic syndrome 2005
AV Fistula placed right arm inside elbow 4/2012
Started HD 9/7/2012
Started PD Oct 2015
Parathyroid removed 6/2019
Cellulitis in Fistula 8/2019
RT arm Fistula removed 9/2019
justjen321
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« Reply #4 on: August 31, 2012, 12:19:03 PM »
Then take the moment. :) Let the little girl cry. It's not uncommon to mourn the time of starting dialysis. Crying isn't a no-no, and it's healthy. :)

As for rushing, if you are feeling bad, you probably aren't rushing. All of the things you talk about are common symptoms when your body gets too full of toxins/fluids. So, while the little girl is crying, remind the adult woman that the treatment WILL help you feel better. :) Both of you.
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TIA reveals failed kidneys (completely unexpected) January 2011
Husband on home PD since May, 2011
Switching to NxStage Home Hemo Nocturnal early spring of 2011

http://failedbeans.blogspot.com/
Jill Marie Evans
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« Reply #5 on: September 17, 2012, 08:30:09 AM »
Oh gosh, how sad~I know I'm reading this late, but oh gosh, belated hugs, and thanks for sharing. :cuddle;
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MightyMike
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Why do bad things always happen to good people?
« Reply #6 on: September 19, 2012, 08:12:27 PM »
Your surgeon should have noticed when he created your fistula that it was too deep.  No worries about the catheter they take about 10 minutes to put in and can be used right away.  You may still be peeing but not as much as your fluid intake.  Believe me once they get that extra fluid off you should notice a difference.  I hope everything goes well for you.  Best wishes.
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"The greatest pleasure in life is doing what people say you cannot do."
   -Walter Bagehot
==========================
December 2003 diagnosed with IgA Nephropathy 80% Function.
October 2004 started In-Center Hemo Dialysis Perma-Cath 5% Function.
September 2005 Living Related Donor (Mother) Transplant.
March 2009 Diagnosed CKD and IgA Nephropathy.
August 2009 Upper Left Arm Fistula.
November 2009 started In-Center Hemo Dialysis.
December 2010 started Home Hemo Dialysis.
January 2012 went back to In-Center Hemo Dialysis.
natnnnat
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« Reply #7 on: September 20, 2012, 03:51:23 AM »
Quote from: mamagemini on August 30, 2012, 09:24:47 PM
I just want to sit and cry but I don't...I keep going.
:grouphug;  :grouphug;  Its the keeping going that makes the difference, tears or no tears.  You are a tough lady for that.
Gregory says, 'I keep going because I don't have any other options.  What else are we gonna do?!'
Sorry about your poor arm.  :(
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Whamo
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« Reply #8 on: November 20, 2012, 05:44:39 AM »
 :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik; :Kit n Stik;
Isn't life wonderful! 
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Big E
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« Reply #9 on: November 20, 2012, 09:57:47 PM »
My access didn't work at first and I had to get a chest catheter. The good things about it were a) having both hands free and b) no needle sticks. You can't keep a chest cath forever, but at least while you have one you'll be able to enjoy those advantages, at least.
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Big E
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« Reply #10 on: November 20, 2012, 10:03:10 PM »
I just noticed how old this thread is, mamagemini :oops;

I'll look for more recent posts to find out how you're doing.
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
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