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Author Topic: How to make your own "Find a Kidney for..." page on facebook  (Read 2167 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: August 22, 2012, 04:40:27 PM »

Here's a good overview on how to make your own "Find a Kidney for..." page on facebook thanks to Find a Kidney Central
https://www.facebook.com/notes/find-a-kidney-central/how-to-start-a-find-a-kidney-for-page/169567576494045

You can get ideas on Jenna's page https://www.facebook.com/pages/Wanted-Kidney-donor/246787398756603
and here's another good page https://www.facebook.com/pages/Find-insert-name-here-A-Kidney/235197566551842 (made by a IHD member)
and info about using social media to get your story out there https://www.facebook.com/groups/400461396665203/ (another IHD member)

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #1 on: October 12, 2012, 08:50:57 PM »

I am glad you posted this, but I am not happy I waited until almost midnight to start on this! Oh well there is always tomorrow!!
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
okarol
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Member for Life
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #2 on: October 13, 2012, 01:52:14 AM »

 :waving; Here are some good tips for posting, updating and maintaining a kidney search facebook page. https://www.facebook.com/note.php?note_id=175140425936760
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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