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Author Topic: My television debut!  (Read 7302 times)
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #25 on: July 16, 2012, 01:10:44 PM »

Plugger, Noahvale, DialysisAdvocate, Cariad, Moosemom, Galvo, lmunchkin, Nat, Boswife, YLGuy, Bill Peckham  THANK YOU for watching the clip!   :thx;


Usually I don't like to mention it - except when it might do somebody some good, so here is to you Jeff!
   :beer1;

FANTASTIC -- GREAT -- sorry I could not get it online --

I am one who is not a fan of NKF - however, there are reasons for such --- Several years back I got kudos for some of my work from NKF head huncho--however, when I then asked for support related to delivery of care in facilities, well, they wanted no part of it -- I am talking about the retaliation/bullying of patients, the lack of adhering to correct procedures, etc... But, I do give them credit for what they do
Roberta Mikles' opinions
Dialysis Patient Advocate - www.qualitysafepatientcare.com
  yeah I am starting to not be crazy about where a lot of their money is funneled to either...I may fundraise a little this year for American Kidney Fund....I told my friend who works for the NKF about how they take a hit on the boards for how the money is spent and he really couldn't defend the NKF. :(

LOVED IT!!!! So sophisticated and well spoken, Rachel.

I don't see anything to critique except I thought the presenter was a little bit ditzy.  LOL!
Oh dear, so it wasn't just me. :rofl; When her first question was about diabetes, I immediately said to the screen "Wait, she's got PKD!" Also, calling you perfect strangers was confusing since it was false. Did they do any kind of pre-interview, or did they just throw you both out there and let her muddle her way through?

You've done us proud, Rachel. :yahoo;

yes I was a little taken back when she first mentioned diabetes & then said we were total strangers...it was very odd...I have 2 statistics ready about the number of folks waiting for kidneys in USA & she took up so much time with bad facts...odd
I'd LOVE to come see you and Neil in Ohio!  Be sure you mean it, because I'll be there before you know it!  LOL!


I mean it Moosey!  :clap;


xoxoxo,
R
Logged

Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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