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Author Topic: Woman Kicked off Cruise Ship After Crew Misplaces Dialysis Machine  (Read 6597 times)
Cordelia
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« on: May 23, 2012, 08:22:44 AM »
What do you think about this scenario?

http://www.wpbf.com/news/south-florida/Palm-Beach-County-News/Disabled-woman-kicked-off-cruise-ship-after-crew-misplaces-dialysis-machine/-/8815578/13527682/-/axwxyjz/-/index.html#ixzz1vdY0IRt7
« Last Edit: May 23, 2012, 08:24:03 AM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
deniferfer
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My nickname is princess
« Reply #1 on: May 23, 2012, 09:14:48 AM »
Tha'ts horrible  and I don't know how they could be so careless with the dialysis machine and then instead of actually trying to find it they kick the family off.  I won't have let them kick me off so easily, I would have been I'm not leaving till you find my machine!!!
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
Desert Dancer
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« Reply #2 on: May 23, 2012, 11:44:03 AM »
How did she do 'manual' dialysis at home if she didn't have her machine? PD? And if she was on PD, why couldn't she do manual exchanges on the ship until they found her machine? Something doesn't smell right.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
Cordelia
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« Reply #3 on: May 23, 2012, 12:05:43 PM »
Quote from: Desert Dancer on May 23, 2012, 11:44:03 AM
How did she do 'manual' dialysis at home if she didn't have her machine? PD? And if she was on PD, why couldn't she do manual exchanges on the ship until they found her machine? Something doesn't smell right.

I wondered that too, DD. How did she do the manual dialysis?
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
amanda100wilson
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« Reply #4 on: May 23, 2012, 12:07:55 PM »
She must have been on PD and only had cycler bags with her and maybe not able to get manual bags from dialysis co. In time for departure. I can understand that.
Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Cordelia
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« Reply #5 on: May 23, 2012, 12:33:57 PM »
I don't know anything about PD.  I've never travelled on dialysis very far, either.
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Adam_W
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Me with Baron von Fresenius
« Reply #6 on: May 23, 2012, 12:51:40 PM »
Remind me never to take a cruise with Carnival!
Logged
-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Desert Dancer
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« Reply #7 on: May 23, 2012, 01:51:39 PM »
Yes, I forgot there's a difference between the manual bags and the cycler bags. However, if you were on PD and going on a cruise, wouldn't you pack manual bags JUST IN CASE? I would.
Logged
August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
amanda100wilson
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Posts: 1202
« Reply #8 on: May 23, 2012, 07:39:50 PM »
No, generally speaking you would pack maybe one or two bags. 
Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
Cordelia
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Posts: 2012
« Reply #9 on: May 23, 2012, 08:02:23 PM »
I would like to think I'd have a back up plan. I think if anything, I would have tried to really carry that dialysis machine on board with me instead. Just my two cents.       :)
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
bleija
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« Reply #10 on: May 23, 2012, 08:59:41 PM »
when i travel my machine never leaves my sight, my hubby and i share one carry on bag and he takes my machine as his, andd i dnt give 2 shits when they tell me it is too large, it is going oin board with us one way or the other. period.
but i dnt understand why they were asked to leave to begin with... ppl travel with dialysis all the time there are cruises especially for dialysis patients, so why were the yasked to leave to begin with. and how did they lose their things?
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Jean
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« Reply #11 on: May 24, 2012, 01:29:38 AM »
Isnt that wonderful, a free 5 day ride. How gracious and generous is that. I think I would be telling them exactly where they could put those tickets too!!!!
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One day at a time, thats all I can do.
amanda100wilson
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« Reply #12 on: May 24, 2012, 08:43:02 AM »
Yep, when I was on PD, machine never left my sight when I travelled. Bleija, My nderstanding about why they were asked to leave was that the parents had stated that it would be a death if their daughter couldn't Do her dialysis.  This was not a dialysis cruise and she didn't have the means to dialyse without the machine because she would have had the wrong dialysis bags, ie cycler bags not manual bags. 
Logged
ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
mcclane
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« Reply #13 on: May 24, 2012, 10:26:58 AM »
While unfortunate, I do feel for the family, on the other hand I can understand why Carnival took that stance, if something - health wise - happened, they don't want to be held responsible for that person; once off the ship they are no longer carnival's responsibility (kinda cheap though if you ask me).

I've taken quite a few cruises while I was on manual PD (most of them with Carnival), and I never had any issues with my PD bags showing up in the cabin.  At times, it was already there, other times I had to wait for them to deliver it to the cabin, in any case, it did arrive.  Norwegian was good too, I never had a problem with Norwegian while I was on PD.
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