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Author Topic: I'm So Excited to Go To This Event!!  (Read 2971 times)
Cordelia
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« on: May 23, 2012, 01:05:45 PM »
I'm SO excited!!!!        :bandance;        :bandance;

My husband and I are going to this!!!!          :2thumbsup;   

http://ctvmedia.ca/ctv/releases/release.asp?id=15153&yyyy=2012
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #1 on: May 23, 2012, 01:10:54 PM »
Sounds wonderful!
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deniferfer
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My nickname is princess
« Reply #2 on: May 23, 2012, 02:25:45 PM »
That's sounds like a lot of fun!! Hope you enjoy!!!  ;D
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
Cordelia
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« Reply #3 on: May 24, 2012, 03:10:42 AM »
Thanks!! I can't wait!         :thx;

I'm leaving tonight since I will need to be there super early tomorrow morning!       ;D
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Whamo
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« Reply #4 on: May 24, 2012, 06:35:56 AM »
 :clap; :clap; :2thumbsup; :yahoo;  I love your positive vibrations.  Have a great time.
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mcclane
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« Reply #5 on: May 24, 2012, 10:28:47 AM »
helene campbell, is she the one that received a double lung transplant ?

Awesome event !  Good to hear that the media is focusing on other disabilities than physical  :bow; :bow;
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Rain
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« Reply #6 on: May 25, 2012, 09:44:36 AM »
Let me know how the interview was.  Helene is a great person.
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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Cordelia
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Posts: 2012
« Reply #7 on: May 25, 2012, 12:56:57 PM »
I was so humbled to be on Canada AM this morning. My husband and I were both interviewed a little bit in  short segment. Just go to the 8 am segment and there I am part way through the segment! I'm wearing a bright red blouse! My husband is wearing a black shirt.

Yes, Helene is the girl who had the double lung transplant last month. She is truly an amazing person! She was interviewed and so were other families touched by organ donation!  Such an amazing experience to be on the set of this show, Canada AM dedicated 2 full hours of organ donation! It was so amazing, I had such a wonderful time!!          :bandance;

Here is the link:

http://www.ctv.ca/canadaAMPlayer/index.html
« Last Edit: May 25, 2012, 01:04:09 PM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #8 on: May 25, 2012, 01:06:41 PM »
 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Cordelia
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« Reply #9 on: May 26, 2012, 03:04:28 AM »
Thanks so much Okarol!           :thx;         :cuddle;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Jean
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« Reply #10 on: May 27, 2012, 12:56:13 AM »
Evidently I am the only one here who could not open that link. But, congrats anyways Cordelia.    :clap;
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One day at a time, thats all I can do.
Cordelia
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Posts: 2012
« Reply #11 on: May 28, 2012, 04:18:16 AM »
Thanks so much Jean!               :thx;             :cuddle;

It was great to be there!            :yahoo;
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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