Poem - sharing

[dialysisadvocate]

The following is a poem that I wrote when my father started dialysis, It was used by several organizations for training.. I asked that my name remain, at the time, anonymous, as my father's facility did not accept my advocacv and when they read the poem it was obvious to me that there were some negative facial expressions as well as comments (of a sarcastic nature)... Yes, we did experience retaliation and they did not view me as an advocate for my father, nor he as an advocate for himself.
opinion of Roberta Mikles www.qualitysafepatientcare.com


The Prayer of a Family Member

MY LOVED ONE IS ILL
WHAT WILL HAPPEN….

MY LOVED ONE IS ILL
MUST I BE STILL……..

MY LOVED ONE IS ILL
HEAR ME  TALK….

MY LOVED ON IS ILL
I NEED A KIND HAND.
TO LEAD ME THROUGH………..

SOMEONE TO TRUST
TO LEAD ME THROUGH…..

I NEED YOUR KIND WORDS……..
TO LEAD ME THROUGH…..

WHEN I NEED YOU
TO LEAD ME THROUGH
I NEED YOU TO BE THERE
TO LEAD ME THROUGH THE TOUGH TIMES

MY NEEDS ARE IMPORTANT
DON’T SEE ME AS ANNOYING…

I NEED YOU TO ADDRESS MY CONCERNS
DON’T SEE ME AS ANNOYING….

If I QUESTION WHAT YOU ARE DONG
DON’T SEE ME AS A PROBLEM
BE THERE FOR ME

DON’T SEE ME AS A PROBLEM
IT IS HARD TO SEE A LOVED ONE ILL

DO YOU UNDERSTAND
IT IS UPSETTING FOR OUR FAMILY

DO YOU UNDERSTAND
IT IS OVERWHELMING TO THINK I MIGHT LOSE A LOVED ONE

DO YOU UNDERSTAND
IT IS A FEELING OF HELPLESSNESS

DO  YOU UNDERSTAND
I NEED YOU TO BE THERE FOR ME

DO YOU UNDERSTAND
PLEASE TAKE TIME TO EXPLAIN TO ME
ALL THAT I NEED TO KNOW

FEAR IS OVERWHELMING

FRIGHTENING THOUGHTS AND FEELINGS

TENDER KINDNESS GOES A LONG WAY

WHO AM I?    I AM A FAMILY MEMBER OF A LOVED ONE




Author: Anonymous - One who has experienced retaliation for attempting to ensure that
                                             a family member received quality safe patient care.




Prayer of a Family Member