Life On The List

Cordelia

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Life On The List

« on: June 04, 2012, 05:14:20 PM »

I created anothe Facebook page called, "Life On The List"

Feel free to come and join and post/blog about your time waiting on the List for an organ.

Type in this address:

http://www.facebook.com/#!/groups/399025610139888/


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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs, Mom to 3 kids to twin daughters (One that has PKD) and a high-functioning Autistic son

Joe

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Re: Life On The List

« Reply #1 on: June 04, 2012, 07:30:04 PM »

I'm not finding it Cordelia, even if I copy the URL and paste it into the address bar.


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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...

Cordelia

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Posts: 2012

Re: Life On The List

« Reply #2 on: June 04, 2012, 07:55:17 PM »

Hi Joe,

Did you try copying and pasting the entire link, including the numbers?


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Joe

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Re: Life On The List

« Reply #3 on: June 04, 2012, 07:58:08 PM »

Found it. I had to come in from a blank page in my browser instead of navigating from Facebook.


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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...

Chris

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Re: Life On The List

« Reply #4 on: June 04, 2012, 10:12:07 PM »

Not working for me even with a blank page, copy and paste, copy and open in new tab


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Diabetes - age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
   -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
   - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless

No two day's are the same, are they?

okarol

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Photo is Jenna - after Disneyland - 1988

Re: Life On The List

« Reply #5 on: June 04, 2012, 11:40:19 PM »

I was able to get it and this link should work https://www.facebook.com/groups/399025610139888/


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU

Cordelia

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Posts: 2012

Re: Life On The List

« Reply #6 on: June 05, 2012, 03:11:58 AM »

Thanks for posting, okarol