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Author Topic: I am fed up  (Read 2940 times)
billybags
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« on: May 09, 2012, 02:04:08 AM »

Last week hubby went to have a drain off on his lung, he has heart problems along with dialysis. Spent 6 hours getting it done. This week we ended in emergency , I thought he was having another heart attack, Signs were aching shoulders and feeling really not well. He had achy shoulders when he had a heart attack last year. They took bloods, chest x-rays. had him hooked up to a heart monitor. Conclusions were: lung had filled up with fluid again, bloods were not good, heart not good and then the they said it was not cardiac related it could be ARTHRITIS in his shoulders. We got home 5 hours later. So that is another thing to add to the list. When does it ever stop. it seems to go on and on. Sorry just ranting.
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chook
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Born to be a Granma!

« Reply #1 on: May 09, 2012, 06:20:46 AM »

It's not a good feeling when things start to pile up like that  :cuddle;
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12

« Reply #2 on: May 09, 2012, 07:50:38 AM »

so sorry!  It's so frustrating!!!!!  You start to feel like there is just plain too many things wrong!  I know!  Hang in there.....

 :flower; :flower; :flower;
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boswife
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us and fam easter 2013

« Reply #3 on: May 09, 2012, 09:33:12 AM »

oh believe me i know this route and feel for you.  We just got Bos hemoglobin stabled so he can now walk and 'try' to get some strength back.  Well guess what, he leaned on the couch the other night, fell asleep and splat on the floor and hurt (not broke thank God) his hip and is now gimping about that and cant get out and walk once again.  It's horrable hard!!  He too gets the lung sucking thing but only takes about 5-10 min.  Geesh.  What stress and scream, stomp or what ever it takes...  Its HARD!!  It HURTS!! and sometimes im sure i'll go before him but gotta hang on cause if i go, he goes as he would quit it all :(   Im sorry others have to go through it.  Im truly feel for ya  :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Poppylicious
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« Reply #4 on: May 09, 2012, 09:51:26 AM »

Awww, billyb.  Sending many *huggles* in your direction.

 :grouphug;
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- wife of kidney recepient (10/2011) -
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MaryJoe
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« Reply #5 on: May 09, 2012, 02:41:59 PM »

billybags - I'm sorry you (and hubby) are having such a rough time. It can be so hard to cope when it feels like the universe is dumping on you!  Seems to me you deserve a good rant about now.  Sending hugs and hopes for easier days ahead. :cuddle;

MJ
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
MooseMom
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« Reply #6 on: May 09, 2012, 02:58:01 PM »

You're joking...arthritis on top of everything else?  What a nightmare. :o
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #7 on: May 09, 2012, 08:43:42 PM »

BillyBags, I feel for you. We landed in the ER back in January because my SO was having such bad pain in his neck and shoulders that he was in tears. Mind you, this is the man who woke up during a transplant because they had to flush the anesthesia because he was ultra sensitive and they didn't know, so they started to lose him. He knows pain, and he said the arthritis in his neck/shoulders/back hurt worse than anything else he's had.

It's stressful, and horrible. Try to get him to see a rhuematologist, or if your primary doc or neph is good, ask about the Flector patches. They are a topical NSAID like Advil but because they absorb through the skin and go directly where needed, they won't harm his kidneys.

Big hugs coming your way!  :cuddle;
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
galvo
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« Reply #8 on: May 09, 2012, 09:38:18 PM »

billybags, it's a bloody rough road. I suppose it's worth keeping on; 'though sometimes I have my doubts.
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Galvo
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