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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
KEEPING TRACK
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Topic: KEEPING TRACK (Read 2381 times)
sandyHD
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KEEPING TRACK
«
on:
May 09, 2012, 10:52:32 PM »
Over the years on HD i developed an insensitive heart. In a way that I don't get affected when patients pass away. I used to be greatly affected by their passing, but not as much I used to. Instead, I honor their lives with a renewed inspiration to live my remaining years to the fullest, as their passing is a huge reminder, that one day soon, I too would perish and follow their paths.
I have to admit, I became close to some of my 'classmates'. I do miss them, their SOs, long after they are gone. But they moved on, so I also had to.
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SandyGirl Age 26 on dialysis for almost 3 years.
Single. Happy. No regrets.
Undecided to get a transplant or not.
ChrisEtc
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Re: KEEPING TRACK
«
Reply #1 on:
May 10, 2012, 04:29:15 PM »
I've only been on dialysis for a year but it always bothers me when someone stops showing up. I always ask the techs if anyone died today. The other day someone replied that one of the older patients had died. Like two weeks earlier we had talked about him going to Colorado to visit his son and stuff. Really bugs me even though I don't know them that well.
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Rerun
Member for Life
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Going through life tied to a chair!
Re: KEEPING TRACK
«
Reply #2 on:
May 10, 2012, 04:40:48 PM »
I think it is just a reminder that .... yes,.... anyone could get run over by a buss tomorrow.... but "we" live 3 days at a time. And if our access quits we are in desperate mode.
People don't like me to preach, but I have accepted Jesus as my savior and His promise is a better place. I have hope in that.
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MooseMom
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Re: KEEPING TRACK
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Reply #3 on:
May 10, 2012, 08:12:12 PM »
I suspect that a certain amount of numbness is necessary to keep one's sanity.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Chris
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Re: KEEPING TRACK
«
Reply #4 on:
May 10, 2012, 10:42:40 PM »
As Pink Floyd sang "Comfortably Numb",, when I was on dialysis never cared or gave t much thought of other paitents passing. There was such an age difference there and all I usually heard was complaining/moaning and groaning because they didn't take their meds, they over drank fluids and I just didn't care to watch or talk about talk shows or soap operas. Maybe I'm cold, but it worked for me and never talked about it at school with people I knew.
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Last Edit: May 10, 2012, 11:59:12 PM by Chris
»
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Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988
Re: KEEPING TRACK
«
Reply #5 on:
May 10, 2012, 11:46:22 PM »
I am a big baby, I suppose. I feel deep sadness at the loss of the people at the dialysis center, or a transplant patient I met while doing volunteer work, or losing friends from this forum.
I don't seem to get numb. I cry, I mourn, I don't forget them. Yes, I recover, keep the sadness at bay.
I was driving a few days ago and heard "What a Wonderful Life" on the radio, cried a few tears and said a little prayer to let our dear Goofynina know how much I miss her.
I remember the sweet grandmother at the dialysis center who was so pleased to hear that Jenna was singing in a gospel chorus class. She told us all about her church's "negro choir." (Jenna was shocked at the n-word.) On the day her chair was empty after she had undergone back surgery, I knew what it meant. Wish I could have held her hand for just a few minutes more.
I worry when our members don't post for awhile.
I can't help it, I just care.
I would never make a good nurse. I would want to bring every patient home.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
big777bill
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Re: KEEPING TRACK
«
Reply #6 on:
May 11, 2012, 02:43:20 AM »
Amen! I'm with you Rerun! My belief in an afterlife with Jesus and loved ones gone before me is the ONLY thing that keeps me sane.
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liver transplant 3/22/2005
CKD 2008
fistula 11/17/2011
catheter 2/07/2012
started hemo-dialysis in center 2/07/2012
fistula transposition 3/08/2012
NxStage at home 3/29/2012
Using fistula at home 6/25/2012
Using new NxStage S High-Flow cycler 3/04/2014
MaryJoe
Sr. Member
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Re: KEEPING TRACK
«
Reply #7 on:
May 11, 2012, 03:42:28 AM »
okarol, you would make a wonderful nurse! A nurse is her patient's advocate, sometimes her patient's only advocate. the best, most effective advocates are the ones who care. I have cried for everdy patient I've ever lost and I remember them all.
MJ
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
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