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Author Topic: Time on Dialysis  (Read 4880 times)
justme15
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« on: May 06, 2012, 05:08:05 AM »
I am interested in how long our members have been on dialysis.  When you complete the poll please answer with the longest time  you have been on dialysis at one time.  For example, if  you were on D for 2 years, then transplant, then D for 5 years, please answer with '5'.  Within  your post you can put your answer and include the type of dialysis you have used.  I hope I'm not confusing. :-)

thanks for your participation!
« Last Edit: May 06, 2012, 05:09:57 AM by justme15 » Logged
justme15
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« Reply #1 on: May 06, 2012, 05:11:54 AM »
I'll start. I was on PD for approx 2 years before my transplant.
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del
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del and willowtreewren meet
« Reply #2 on: May 06, 2012, 05:27:41 AM »
My husband has been on dialysis for 15 years this coming August.  He did PD for almost 3 years, incenter hemo for 6 years and nocturnal home hemo for the past 6 years.  No transplant.
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Don't take your organs to heaven.  Heaven knows we need them here.
Traveller1947
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« Reply #3 on: May 06, 2012, 05:35:20 AM »
I've been on hemodialysis in-center for seven years.
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justme15
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« Reply #4 on: May 06, 2012, 05:58:50 AM »
thanks traveller1947, can you also complete the poll? I would like to also have a visual/graphic representation of the results as well.
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Arcticat2000
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What. Me worry?
« Reply #5 on: May 06, 2012, 06:18:28 AM »
In center hemo for 2 years. Nocturnal hemodialysis in-center for 7 years.
« Last Edit: May 06, 2012, 06:20:21 AM by Arcticat2000 » Logged
ESRD diagnosed June 2003
Dialysis begins July 2003
Nocturnal Dialysis since Aug.2005-present
3 nights per week @ 7hrs per session
Heart bypass surgery Nov.2007 w artificial valve
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: May 06, 2012, 06:23:38 AM »
Quote from: Traveller1947 on May 06, 2012, 05:35:20 AM
I've been on hemodialysis in-center for seven years.
What he said!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
SteveK87
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« Reply #7 on: May 06, 2012, 07:06:58 AM »
My wife started dialysis in Dec. 2010, and began home hemo in Feb 2011
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cattlekid
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« Reply #8 on: May 06, 2012, 07:08:01 AM »
I started dialysis in January of 2011 in center, then switched to home hemo in November.
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Poppylicious
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« Reply #9 on: May 06, 2012, 07:41:51 AM »
My Blokey was on haemoD for two years and four months, except for about three months where he attempted - and failed at - PD.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
ESRD Survivor
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« Reply #10 on: May 06, 2012, 07:50:23 AM »
First time with Pd 6 weeks, then 2nd time with Pd 8 years, now on Hemo 2 years.
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jeannea
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« Reply #11 on: May 06, 2012, 10:25:36 AM »
You all make me feel lucky. Only 3 years of dialysis here then I got the call.
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Cordelia
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« Reply #12 on: May 06, 2012, 11:46:44 AM »
I started Aug 15, 2010. So, will be 2 years coming up this summer.

I'm hoping the stars will be alligned for me to pursue a transplant this coming summer or fall at the latest. That's only IF they can find a match for me in the paired exchange program.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
big777bill
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« Reply #13 on: May 06, 2012, 01:21:36 PM »
 I'm a newbie. 1 month in center and 2 months of home hemo. I have been disqualified for a transplant. :'(
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liver transplant 3/22/2005
CKD 2008
 
fistula 11/17/2011
 catheter 2/07/2012
 started  hemo-dialysis in center 2/07/2012
 fistula transposition 3/08/2012
 NxStage at home  3/29/2012
 Using fistula at home 6/25/2012
 Using new NxStage S High-Flow cycler 3/04/2014
ChrisEtc
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« Reply #14 on: May 06, 2012, 01:33:44 PM »
A little over a year in center.
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bleija
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« Reply #15 on: May 06, 2012, 02:10:46 PM »
2 and a half years pd, with a six month bout with in center hemo... cant beleive june will be my 3 year mark... maybe i wont make it :pray;
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kitkatz
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« Reply #16 on: May 06, 2012, 03:33:29 PM »
13.5 years total- hemodialysis 3 times a week 4 hours then nocturnal hemodialysis 8 hours 3 x weekly.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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« Reply #17 on: May 06, 2012, 03:53:50 PM »
30 years.  In-center hemodialysis, which started as a self-care unit.
I started when I was 23 years old.

 8)
« Last Edit: May 07, 2012, 06:10:09 AM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #18 on: May 06, 2012, 09:15:11 PM »
My significant other started hemo May 18, 2009. Started PD January 8, 2010 so were coming up on the 3 year mark. Been killing time hanging out on the deceased donor list since....
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
mcclane
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« Reply #19 on: May 07, 2012, 10:22:19 AM »
I've been dealing with kidney issues for what seems an eternity.  around 3 years on PD, then transplant #1 (4 years), that failed, then PD again for a year, peritoneal membrane died, then hemo for about 10 months before my mom gave me the 2nd best gift of all (first was giving birth to me), one of her kidneys.
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adairpete
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Me and Karl
« Reply #20 on: May 07, 2012, 11:08:24 AM »
Hemo 5 months (and never again!). PD for the last 21 months and counting.
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
Whamo
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« Reply #21 on: May 07, 2012, 12:51:56 PM »
I started dialysis in September. 
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Bill Peckham
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« Reply #22 on: May 07, 2012, 02:36:07 PM »
21 years
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Joe
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« Reply #23 on: May 08, 2012, 07:32:14 AM »
I've been doing PD since last August
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