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Author Topic: nurses education  (Read 1632 times)
sullidog
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« on: May 05, 2012, 09:55:27 AM »

A couple weeks ago I was eating a protein bar, one of the dialysis nurses told me that eating protein bars could make my protein go up too high, now correct me if I'm wrong but predialysis is where you have to watch your protein but once you are on dialysis your protein has to be 4.5 or higher, there's no limit once you are on dialysis. I think this nurse needs to be educated on this area before she gives the wrong info to too many patients and their protein goes too low.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
smcd23
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The patient, the baby and the donor - October 2010

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« Reply #1 on: May 05, 2012, 11:11:19 AM »

My SO is on dialysis now (PD) and he has to have a special protein shake every other day, and they want him to eat a protein bar every day and have some sort of protein with each meal.  I am pretty sure she was incorrect.

However some of those protein bars can have A LOT of other stuff you don't want, like phosphorus. Maybe she was thinking something along those lines - eating the protein bars could raise phosphorus or other things?
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
jeannea
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« Reply #2 on: May 05, 2012, 02:37:37 PM »

There could be an upper limit that I don't know about. But you'd probably have to eat 20 or 30 of them every day to get there.
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Whamo
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« Reply #3 on: May 05, 2012, 04:16:48 PM »

Yes, it can happen over time.  I know because I just did it.  My BUN ration got too high, so the doctor told me to cut back.  My last labs were okay, after I did that.  But I was eating a lot of protein everyday for three months before it built up that high.
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