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Author Topic: woodsman update  (Read 4188 times)
woodsman
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« on: April 03, 2012, 02:45:27 AM »
Hello to you all, Its been sometime since i have posted and i thought I'd update. Well dialysis continues to be a nightmare, one time they get it the next 5 times i get poked 4-7 times, had another 2 infiltrations and another vein clean out last week, I just wonder at times if it is all worth the pain and frustration. I try to make the best of it but every time  it seems to get better then it all goes  wrong. Now i have a rash around my fistula and whats its from is beyond me.. BP is so low when i leave i am ill sometimes 79/47 sometimes a bit higher.. I need encouragement but mostly i need a kidney///// :Kit n Stik;
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Whamo
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« Reply #1 on: April 03, 2012, 03:50:25 AM »
Dang me, it sounds like you have it rough.  I have a little story for you.  A clueless nurse, nice guy, but he's clueless, missed my vein yesterday, as usual.  Well, another nurse, a black lady, big, nice, and smart, came over and asked what the big deal was    Later, she came over to help me get off.   Clueless didn't want to leave for some reason, so she pushed him away.  I love this nurse!  LOL.
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Rerun
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Going through life tied to a chair!
« Reply #2 on: April 03, 2012, 04:54:03 AM »
It kind of goes in cycles for me too.  How long have you been waiting on the list?? 

Hang in there.  You can refuse the idiot and ask for the smart one.  Remember, you are paying them not the other way around.

Hang in there.     :pray;
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Riverwhispering
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« Reply #3 on: April 04, 2012, 04:03:31 AM »
Whamo what do you mean she helped you get off? LOL
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It's only one step from the Jungle to the Zoo
willowtreewren
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« Reply #4 on: April 04, 2012, 04:50:21 AM »
Quote from: Riverwhispering on April 04, 2012, 04:03:31 AM
Whamo what do you mean she helped you get off? LOL

 :rofl; :rofl; :rofl;

Woodsman, are you actively pursuing a transplant? You may want to follow in Larry Green's footsteps and look on Craig's List. And FaceBook. Our transplant center had a class on how to raise your chances of getting a live donor. There are many options out there.

I hope you can take advantage of them and improve your wait time.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
gothiclovemonkey
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« Reply #5 on: April 04, 2012, 08:00:45 AM »
Is it at all possible to try a different clinic?
I was going to a davita, and had tons of issues with it, cramping, infultrations almost every treatment, etc, and i ended up going to another clinic and i rarely have problems!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
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LISTED ACTIVE! 11/14/11 !!!
looneytunes
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« Reply #6 on: April 04, 2012, 08:40:22 AM »
Oh Woodsman....it's good to hear from you but I'm sorry things are not going better.  Perhaps a talk with the charge nurse would help.  At least to get Clueless away from you.  I'll be keeping fingers, toes and eyes crossed that you get a kidney soon.  :grouphug;
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"The key to being patient is having something to do in the meantime" AU
MooseMom
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« Reply #7 on: April 04, 2012, 02:32:11 PM »
Hey there, stranger!!  Why couldn't you return to IHD with better news?  I can't believe your clinic isn't getting any better sticking you.  You've had problems with them forEVER. ::)

How are you feeling physically?  I know dialysis is a nightmare, but are you feeling any benefits at all?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
woodsman
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« Reply #8 on: April 21, 2012, 05:02:45 AM »
Hi everyone i just stopped in to say that my last 10 treatments have gone without a hitch, even placing the needles don't hurts anymore. I am only gaining 900 gms at each session so things are looking up. finally... :bandance;
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boswife
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us and fam easter 2013
« Reply #9 on: April 21, 2012, 08:04:17 AM »
now thats good news  :2thumbsup;  So good to hear from ya and even better to hear that things are leveling out for you.  Geesh, its about time!!   :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
cassandra
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When all else fails run in circles, shout loudly
« Reply #10 on: April 21, 2012, 10:54:13 AM »
Glad to hear it, keep Clueless away please.

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Whamo
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« Reply #11 on: April 21, 2012, 03:13:22 PM »
Riverwhispering,  You have a dirty mind!  I like that.  By "getting me off" I meant she helped me get off my needles, apply bandages, etc.   What did you have in mind?  >:D >:D >:D >:D
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MooseMom
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« Reply #12 on: April 21, 2012, 03:51:54 PM »
Quote from: woodsman on April 21, 2012, 05:02:45 AM
Hi everyone i just stopped in to say that my last 10 treatments have gone without a hitch, even placing the needles don't hurts anymore. I am only gaining 900 gms at each session so things are looking up. finally... :bandance;

Oh, that's great news!  How are you feeling these days, woodsman?  Do you feel pretty good, or is dialysis really difficult to cope with physically?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #13 on: April 25, 2012, 11:42:39 AM »
Quote from: Riverwhispering on April 04, 2012, 04:03:31 AM
Whamo what do you mean she helped you get off? LOL

I was thinking the same thing, that is above and beyond!
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
paris
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« Reply #14 on: April 25, 2012, 05:37:57 PM »
Hi Woodsman, it is great to see you again.   Glad the past few sessions have been better.  Hopefully it continues for awhile.  And hopefully, the kidney will come through soon.   Glad you posted.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #15 on: April 26, 2012, 12:04:18 AM »
Quote from: woodsman on April 21, 2012, 05:02:45 AM
Hi everyone i just stopped in to say that my last 10 treatments have gone without a hitch, even placing the needles don't hurts anymore. I am only gaining 900 gms at each session so things are looking up. finally... :bandance;

 :yahoo; Yes! So glad you're doing well!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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