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Author Topic: No Sleep For Bad Kidney?  (Read 4744 times)
KraigG
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I feel like I'm on the Dark Side of The Moon.

« on: January 13, 2012, 12:31:08 AM »

Most nights, I can't sleep. It's nearly 2:30 am right now, and I'm wide awake.

Is this caused by dialysis? Is there something in the solution that causes folks to not sleep? Is it anxiety? Depression?

Am I the only one this happens to?

If I take a sleeping pill, I'm drowsy for a whole day following. I attribute that to the kidneys being unable to flush out the medication?
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
Kidney fails: August, 2011
Second round of dialysis: August, 2011
Desert Dancer
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« Reply #1 on: January 13, 2012, 05:37:57 AM »

In my case it seemed to be my PTH level. Within a week of having my parathyroids out my insomnia disappeared.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
ToddB0130
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« Reply #2 on: January 13, 2012, 06:56:21 PM »

My trouble sleeping tends to be about anxiety about my health.  I am pre-D right now,  so dialysis is not my reason.
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Rerun
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Going through life tied to a chair!

« Reply #3 on: January 13, 2012, 07:22:24 PM »

Mine is on and off.  That is why I don't think I could work full-time.  Some nights I'm awake and some nights I'm sleeping.  I just hate not being able to sleep and then I'm so tired the next day. 

I can take a 1/4 of a sleeping tablet and it is just enough to get me to sleep and stay there for a few hours.  If I take a whole one I have some sort of adverse reaction and I'm awake all night.
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Traveller1947
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« Reply #4 on: January 14, 2012, 02:31:52 PM »

Hi, KraigG!  You're definitely not the only one this happens to!  I don't think it's the dialysis itself that's the culprit, unless you're sleeping in the the chair or napping when you get home.  Maybe anxiety, maybe depression.  See what your PCP has to say, if those are possibilities for you.  What I do when I can't sleep, is get out of bed entirely and do something in another room until I feel sleepy and then go back to bed again.  All the best to you.
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jshabanian
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« Reply #5 on: January 14, 2012, 03:55:27 PM »

I have the same problem!! I sometimes fall asleep but then wake up about 1 hour later and can fall back to sleep.  I get really itchy and restless. My legs move involuntarily ad I keep twitching.  I am on the cycler and at the end of the drain cycle I get leg cramps that make me have to jump out of bed to stand on the cramped up foot/leg.  About 50% of the time I have drain and fill pain that wakes me up.

I had some oxycodone left over from the catheter surgery so I started taking one tablet before bed.  It worked like a charm and I fell asleep and slept until 5 am.  I felt so rested and wonderful.  Then I ran out of pills and the Dr. will not refill because they are controlled and not prescribed for sleeping.  I don't know what my solution to this problem is but am open to any ideas you may have.

I tried Vicoden but it didn't have the same effect and I was still awake most of the night, twitching, itchy and writhing.  Miserable.

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sullidog
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« Reply #6 on: January 14, 2012, 08:14:19 PM »

I have sleeping problems off and on, they were much worse pre d though. I don't take sleep aids often do to them making me sleepy the following day, yes I think it's not being able to have the kidneys flush them out so they stay longer, I have found if you sleep past a certain time in the morning for me 11:00 am eastern I will be awakethat night, which I find that in itself interesting.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Riki
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« Reply #7 on: January 17, 2012, 12:55:48 PM »

I've been to different doctors and tried many different things to overcome insomnia.  I was told that people with kidney failure tend to have sleeping issues because of a lack of melatonin, and it was suggested that I try taking melatonin before bed.  I tried it, but it didn't work.  I was also prescribed lunesta, but it only worked once.  I find that if I can't sleep, I'll go online and play games, on facebook or pogo, or I'll play games on my DS until I get tired.

As for getting out of bed and doing something else, I had a doctor tell me to not do that
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Riverwhispering
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« Reply #8 on: January 17, 2012, 02:24:44 PM »

I'm pre dialysis too,  going to be very soon I think when I start.   

I start around 5pm and take a nap, sleep one to two hours and wake up.  I usually go pee and can lay down and sleep for one or two more hours.  It can go like that all night and around 5am i'm wide awake.  Usually around 8 or 9 pm i'm up for a few of hours between naps.  I don't know why I can't sleep without waking up so often, it drives me nuts but taking a lot of these naps seems to help me not feel sleepy during the day.  Maybe it's the long winter nights.. I doubt it but that's my excuse
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It's only one step from the Jungle to the Zoo
texasstyle
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« Reply #9 on: January 17, 2012, 05:11:47 PM »

My husband has slept good in years. he does nap off and on during the day so he is actually getting some sleep. He has tried lunesta sleep aid that helped some what but it was a little more expensive co pay. Pharmacist said something about the molecular structure made it so they couldn't do a generic I think. He has Ambien CR ans sometimes they work, sometimes not. Just a word on the Ambien. If you take them try to do with in a reasonable time before going to bed. Once you take them you should be done your daily activities. I have tried them a couple times. i slept really well and personally was not groggy in the morning. I believe as far as it being a part of "dialysis" (not sleeping well), may be because most people the after noon afterwards then you're messed up for night, but mostly it is more due to the fact of having kidney failure and the kidney itself.
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caregiver to husband using in-center dialysis 4 years
fearless
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« Reply #10 on: February 13, 2012, 04:46:23 PM »

anemia can cause insomnia
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Cordelia
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« Reply #11 on: February 13, 2012, 05:00:11 PM »

I gotta ask, Are you on the night shift like say between 6 pm and 10pmISH? Because I had major sleep problems when I was on that shift......once I shifted to the most earliest shift for dialysis, the 7 am-11 am shift, my sleep improved bigtime.

I used to get home around 11 pm, I was starved for a meal, ate a big meal at 11 pm at night---which was the worst thing for me...go to bed on a fully stomach, did my body NO justice. I was wired til 2:30 am too. Getting up for kids for school the next day early, was NO fun.

I did the night shift for almost 3 months because the nursing staff told me that those who just start D, must do the last shift, they were not allowed to do the morning or afternoon shifts whatsover. It made me angry that I could not "Choose" my shift in the beginning, it sucked bigtime. Once an opening came up months later,  I jumped on it and have never looked back/regretted the change since.

Anyways, in a nutshell, it might just take a shift change to make a dfference, it did for me      :)
   
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Whamo
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« Reply #12 on: February 19, 2012, 03:22:39 AM »

I find myself sleeping for three hours after dialysis, usually starting an hour or two after dialysis, but then having trouble staying asleep later that night.   The odd thing is that I will sleep well for a couple of nights, and then bam, can't sleep, or up at 2AM watching "Morning Joe" on television or watching a documentary on Netflix.  I have streaks, both good and bad, and I don't know why.
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