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Author Topic: Holding after dialysis  (Read 2341 times)
JeanieSpokane
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« on: January 23, 2012, 03:55:28 PM »

I had a marathon holding session today - two HOURS!  My fistula is fine - thrums like a bastard - I can't even sleep on my left side because it buzzes through my pillow.  An ultrasound showed it is flowing marvelously.  I've cut down my heparin to 2,000 bolus, no maintenance.  It is driving me absolutely nuts.  Give me the days of my catheter - which i used for nearly two years!!! 
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Jeanie
Started dialysis 9/30/2009
Started buttonhole 5/5/2011
Go to garage sales, pile stuff from garage sales to make room for more stuff from garage sales, read books (from garage sales); plan to return same to any garage sale of my choice all at once.
del
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« Reply #1 on: January 23, 2012, 05:40:47 PM »

Oh my goodness!!  That is a long time!!!  Hubby does nocturnal home hemo - uses a bolus of 2000 heparin and a 1.4 every hour.  He usually only holds for les than 5 minutes.  2 hours is WAY too long!!
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Desert Dancer
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« Reply #2 on: January 23, 2012, 09:07:23 PM »

Holy Mackerel!   :o :o Two HOURS??? No wonder you long for your catheter. I do nocturnal - 2,000 bolus and 1.2 per hour - and I am down to holding for 1 or 2 minutes. Do they have any clue why you have to hold so long?
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

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gkcoley
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« Reply #3 on: January 23, 2012, 10:48:17 PM »

did they do a venagram? ive always heard increased bleeding is i sign of an impending clot off, mine would bleed for 3-4 hours in the weeks before it clotted...might wanna ask the center about that.  Dont mean to scare you and hope this helps :)
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keefbeer
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« Reply #4 on: January 24, 2012, 03:20:32 PM »

"did they do a venagram? ive always heard increased bleeding is i sign of an impending clot off, mine would bleed for 3-4 hours in the weeks before it clotted...might wanna ask the center about that.  Don't mean to scare you and hope this helps"


This is great advice, my holding time was slowly but surely getting longer, up to 90 min.  A fistula-gram should the fistula was closing off so the Doctor went a head and got out his balloons on a wire and carried out a fistulaplasty.
My holding time is now less than 10 minutes and that's with a flow of 3200 and 14 gauge needles

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sullidog
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« Reply #5 on: January 24, 2012, 05:06:46 PM »

I agree, even if it does flow good that holding time tells there's something about to go wrong.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Rerun
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« Reply #6 on: January 25, 2012, 07:16:02 AM »

Good to hear from you Jeanie!  Yeah, there is too much pressure.  Do you know what your v and a pressures are when your are on the machine?  Holding more than 10 minutes ???  Too long. 

How is the button hole procedure going?

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Whamo
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« Reply #7 on: January 25, 2012, 09:55:17 AM »

Two hours sounds easy to me, but I'm on a 4 hours hemo program.  I get that part about your fistula pulsing and keeping you awake.  That can drive you nuts.
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JeanieSpokane
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« Reply #8 on: February 04, 2012, 12:06:57 AM »

Thanks, all.  Whamo - it's not my dialysis time (3.5 hours) - it is the time I sit there at the end and hold my site until it stops bleeding.  Actually - I think I found the problem.  My center wasn't cooperating and letting me have the same tech each time even though there was one available.  The techs have been really having trouble getting the blunts in the buttonholes, more often than not pegging the phantom hole one of them drilled.  I now have the same tech continuously and she used the touch cannulation method (holding the tubing behind the wings) and it glides right in.  I am hoping that after a few times, my tissue will shrink and the holding time (after dialysis) will lessen to normal.  If not, I'll see my fistula surgeon for the fistulagram. 
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Jeanie
Started dialysis 9/30/2009
Started buttonhole 5/5/2011
Go to garage sales, pile stuff from garage sales to make room for more stuff from garage sales, read books (from garage sales); plan to return same to any garage sale of my choice all at once.
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