So confused abot phosphorus! Help!

[Sugarlump]

My nephrologist agrees that more dialysis is better, but there simply isn't the chair space for any more than 3 sessions except in medical emergency!
We have been trying to get home dialysis for two years, you wouldn't believe the excuses and hurdles they put in our way, So frustrating...
The renal consultant in charge of home haemo is very very cautious and we don't have access yet in our area to NX stage machines!!!
Hence 

[Whamo]

  :bandante;  I finally got my phosphorus level down.  Hooray! 

[ianch]

I dont take phosphate binders anymore, with 160 hours treatment per month 10 to 11 hours per session there is just no need.

[obsidianom]

I dont take phosphate binders anymore, with 160 hours treatment per month 10 to 11 hours per session there is just no need.

On Nxstage my wife only is on machine 17 hours per week and needs to ADD phosphorus as she runs too low with this amount dialysis. So it is not necessary to go to extremes of 40 hours per week. Everyone is different.

[kristina]

My nephrologist agrees that more dialysis is better, but there simply isn't the chair space for any more than 3 sessions except in medical emergency!
We have been trying to get home dialysis for two years, you wouldn't believe the excuses and hurdles they put in our way, So frustrating...
The renal consultant in charge of home haemo is very very cautious and we don't have access yet in our area to NX stage machines!!!
Hence 

Hello Sugarlump,
                         are you trying to get NX Stage training & NX Stage one dialysis? Is NX Stage training possible in your area?
Why do you experience such difficulties to get NX Stage home dialysis? What are the reasons for your nephrologist to be so cautious about it?
(I have been trying to enquire about it myself and have not "come across" a definite answer ...)



Thanks from Kristina.

[ianch]

hehe its interesting that a doctor feel that 40hrs is extreme.  Home hemo in NZ is 24-32 hours per week.   Dr A has commented that 32 or above is best practice.   I'm not doing best practice for one particular reason, I'm doing it as its the best chance I have to live for 25+ years on dialysis, provide for my family, and watch my children grow up.   

I dont take phosphate binders anymore, with 160 hours treatment per month 10 to 11 hours per session there is just no need.

On Nxstage my wife only is on machine 17 hours per week and needs to ADD phosphorus as she runs too low with this amount dialysis. So it is not necessary to go to extremes of 40 hours per week. Everyone is different.