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Author Topic: Rethinking my dialysis plans  (Read 6569 times)
MooseMom
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« Reply #25 on: November 21, 2011, 09:38:21 AM »

brandi1leigh, you are so right.  You are the one living a dialyzing life, so while you can be informed by other's opinions, those opinions shouldn't force you into doing something you are not comfortable with.  If your clinic meets your needs and makes your life on the machine reasonably comfortable and successful, then that is really wonderful.  I know home dialysis isn't for everyone, and the patients who have to have their dialysis in a clinic should expect good treatment just like anyone who dialyzes at home.  I hate the whole idea of inclinic people having to settle for less with fewer choices.

Hemodoc, your blog post was scathing and to the point.  After I recover from my righteous indignation, the phrase "Extra Cheese Dialysis" will strike me as actually quite clever.  It does make me giggle a bit.  Thank you for putting that man straight.  That was a hideous entry he posted.

PS...I just saw the link to your blog on RenalWeb.  Thanks for the link you put here on this thread.  I hope everyone here reads it and feels the same indignation that I do.  "Extra Cheese Dialysis" indeed!!  Outrageous!
« Last Edit: November 21, 2011, 11:15:00 AM by MooseMom » Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
fearless
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« Reply #26 on: November 21, 2011, 08:02:23 PM »

Thank you Hemodoc!
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Hemodoc
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« Reply #27 on: November 21, 2011, 08:37:25 PM »

Thank you Hemodoc!

You're welcome, but I am in the same boat as everyone else on dialysis. I believe this doc simply said what a lot of nephrologists believe themselves. Sad situation.
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Peter Laird, MD
www.hemodoc.info
Diagnosed with IgA nephropathy 1998
Incenter Dialysis starting 2-1-2007
Self Care in Center from 4-15-2008 to 6-2-2009
Started  Home Care with NxStage 6-2-2009 (Qb 370, FF 45%, 40L)

All clinical and treatment related issues discussed on this forum are for informational purposes only.  You must always secure your own medical teams approval for all treatment options before applying any discussions on this site to your own circumstances.
MooseMom
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« Reply #28 on: November 21, 2011, 10:41:30 PM »

I believe this doc simply said what a lot of nephrologists believe themselves. Sad situation.

To call it "sad" is being way too polite! :rofl;  I can think of some other words that would be more fittingly descriptive. :P
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
jessie17
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« Reply #29 on: December 14, 2011, 11:54:12 AM »

iv been on dialysis 2 and half years, 2years on heamo dailysis were i went in clinic- 6months on pd were i hook myself up at night i also have to go once a week for heamo in clinic as my kidneys were removed pd dosnt give me enough clearence but once a week beats 3times a week sitting there for 4hours can be tough going and sooooo boring! Pd i feel is the best option of dialysis for us dialysis patients it is much gentler on the body you have alot more energy and it frees up your time also the diet is not as strict. For me heamo dialysis wrecked me i had no energy after it and would have trouble sleeping. since iv started pd i feel so much better. I really feel you should give pd ago dont be scared of learning how to set everything up if i can any1 can it is simples!! ok so maybe at the start it would be good ta go and have the nurses care for you as it is daunting but as you get used to the whole dialysis thing give pd ago if the time comes to when you might need dialysis you will soon find that the freedom of home dialysis is much better for you mentally and physically, also though you might not be in the hop as much dont worry the pd nurses or home dialysis nurses if you decide to do heamo at home are great they will keep in contact and check up on you.
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