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Author Topic: Pulmonary edema......or not  (Read 2312 times)
Adam_W
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Me with Baron von Fresenius
« on: November 16, 2011, 01:34:55 PM »
For the last few days, I have been having symptoms of pulmonary edema (coughing, "gurgling" noise in the throat when I breath, some shortness of breath). I figured that it was because I had a lot of fluid buildup. In the last few days, I've pulled off a lot of fluid on dialysis, and today I literally couldn't pull off any more. I'm definitely at my dry weight, but I'm still having the symptoms. They are worse when I'm laying down. Neither me or my nurse thinks it is caused by fluid, and I'll be having a chest X-ray tomorrow to rule out pulmonary edema. Has anyone had these symptoms that are not caused by fluid overload?
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
galvo
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« Reply #1 on: November 16, 2011, 03:43:59 PM »
 "coughing, "gurgling" noise in the throat when I breath, some shortness of breath, worse when I'm laying down".

These symptoms describe my pulmonary edema exactly. But your X-ray should help sort things out. Good luck to you.
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Galvo
del
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« Reply #2 on: November 16, 2011, 05:27:41 PM »
You can have fluid hidden in your lungs.  You can reach your goal weight but there will still be fluid left in your lungs. 
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Don't take your organs to heaven.  Heaven knows we need them here.
gothiclovemonkey
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« Reply #3 on: November 16, 2011, 09:28:47 PM »
im experiencing the same thing, but my xrays were clear... the doctor doesnt have an answer for me.
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billybags
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« Reply #4 on: November 17, 2011, 10:44:15 AM »
Yes, we have just come back from the unit, husband is getting fluid in the lungs due to a very weak heart.He coughs and is breathless especially at night. Have you tried more pillows to keep you a bit more upright in bed?  He has had to have a lung tap, this is the third in about four months, very scarry. There is not much they can do because his heart is not working right. Hope you get it sorted.
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del
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« Reply #5 on: November 17, 2011, 12:03:29 PM »
Hubby had 25 lbs of fluid on when PD stopped working for him.  He had the gurgling sounds, shortness of breath, etc and nothing showed up on x rays but the fluid was there.
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Adam_W
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Me with Baron von Fresenius
« Reply #6 on: November 17, 2011, 08:52:05 PM »
Well, the symptoms got bad enough for me to go to the ER, and it apparently has nothing to do with dialysis at all. I seem to have acute bronchitis. The doctor prescribed to medicine to help the coughing and the wheezing, but otherwise I just have to wait it out. It usually clears up in a week or two.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
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