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Author Topic: what a nightmare  (Read 3178 times)
woodsman
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« on: October 29, 2011, 08:41:12 AM »
7 needles today i think i am done and will just go on without dialysis and take my chances................  holy shit i am so pissed :Kit n Stik;
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MooseMom
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« Reply #1 on: October 29, 2011, 09:27:22 AM »
I don't claim to have any experience with dialysis and cannulation, but even to my little brain, this just seems so out of the ordinary.  I am really shocked because I had every reason to believe that you'd have no problems.  It must be just so frustrating to have cannulation, of all things, being so fraught.  What does the clinic say?  Is everything OK with your fistula?  There must be something weird going on for you to have so much trouble.  What do you think is behind this?

I am so very sorry you are having these problems.  I remember well your pre-d days and your initiating dialysis, and I really thought you'd be fine.  I can imagine that each session is a nightmare.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
ToddB0130
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« Reply #2 on: October 29, 2011, 10:05:59 AM »
Very sorry you had a bad day getting started on your D.  Here's hoping the next ones go better.  Keep it up.  I checked out the photos of your grandson.  He's a cutie.  Well worth it all, I am sure.
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No day but today
willowtreewren
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« Reply #3 on: October 29, 2011, 10:17:56 AM »
Woodsman,

Is there anyway you can ask for the VERY BEST cannulator to stick you next time? I would definitely talk with your neph and explain how upsetting and painful this is. You may need to be checked by a vascular surgeon. And I'm telling you, a VS would be appalled at 7 sticks!

I'm hoping things will improve.  :cuddle;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
MooseMom
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« Reply #4 on: October 29, 2011, 10:26:04 AM »
I know I've asked you this before, but I want to ask again in case your answer has changed.  Other than the sticking, how are you doing on D?  Are you feeling reasonably well?  Are your labs good?  Is it just the sticking that is a problem, or are there other issues?  I know in the past you said that things were going well enough...is that still the case?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013
« Reply #5 on: October 29, 2011, 02:49:24 PM »
this is just horrable!!!!  Is it still like this most of the time?? or has it been going relitivaly smooth.  I fought for the tech that i knew 'knew' bo's fistula to cannulate him for a good long while as twice he was infultrated by someone else.  This worked great for a while, then he had to go on the 'rotation' with the others in center.  BUT.... by then his fistula was a bit more established and all went well from there.  Then, when he did his button holes, i had to fight for the same person to use them and at first THAT didnt happen until i told them i really had to have it like that as we were going home and needed ONE track, not everyone in the clinics...  I do hope that things will go better for you.  im so sorry, but please dont give up.... 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
texasstyle
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« Reply #6 on: October 30, 2011, 05:52:37 AM »
*hugs*
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caregiver to husband using in-center dialysis 4 years
woodsman
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« Reply #7 on: October 30, 2011, 09:46:05 AM »
I have been to 2 V/s and they both tell me it is one of the bst fistulas they have seen, so why can't they hit it well that is a good question... I am so flustrated and angry and every muscle in my body hurts today from clenching up from all the pokes... 
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willowtreewren
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« Reply #8 on: October 30, 2011, 10:00:15 AM »
This is all the more reason to get you V/s involved. This kind of treatment might (probably will) damage your fistula.

 :banghead;

Another possibility is to self-cannulate. You will have so much more control and can feel immediately if you are about to infiltrate!

When I went away for a week and Carl went back in-center, they just handed him the needles the first day (he had said that he was interested). And away he went! Except for watching me cannulate him, he had NO training!

You could do this and it may just save your fistula and your sanity!

 :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
CebuShan
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« Reply #9 on: October 30, 2011, 12:29:41 PM »
7 sticks is outrageous! I stop them after 3. I agree that you need to insist on the best. While they are cannulating ask them to describe how it feels. (For example, mine is deeper than it feels and feels like it goes to the right but actually goes straight. It feels like it's in but it isn't until you feel and hear a pop). That way you can teach the other techs how to stick you. If you are brave enough try doing it yourself (I haven't got the nerve to do that yet) These are supposed to be trained professionals but they will keep doing the same thing until you speak up for yourself. That's what they did to me until I said enough is enough!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
sullidog
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« Reply #10 on: October 30, 2011, 04:49:25 PM »
the techs at my center well if they can't get it twice they will have someone else try, but yes I agree, ask them if it's deep, or if it's angled, etc. You know you have a good stick because you feel a pop.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: October 30, 2011, 05:53:28 PM »
Good Lord, Woodsman, like MM, I just assumed everything was good for you cause we hadn't heard!  Im so sorry, but Aleta is right, you better get some control on this situation before they damage it.  Definately let VS get envolved!  It's ashame you can't do it yourself!  Like Sulli, you will know instantly when it is in.  I stick my DH and I know when it is in and Im not him! 

I don't do buttonholes but I use "ladder" method, and he has a beautiful thick vein from wrist to elbow!  Please try self cannulation, it could very well save your fistula!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Sax-O-Trix
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« Reply #12 on: October 30, 2011, 06:55:13 PM »
 :grouphug;   How frustrating!  I have been there with I.V.s and that was bad enough.  I hope others who are on dialysis have practical solutions for you and can offer you sound advice.  I can only offer you my sympathies and hope that things will go better next time :pray;
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Preemptive transplant recipient, living donor (brother)- March 2011
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