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Author Topic: Study on FSGS  (Read 2262 times)
rsudock
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will of the healthy makes up the fate of the sick.
« on: August 15, 2011, 12:51:41 PM »
I saw this post on the National Kidney Foundation about a drug trial on Facebook I am just going to copy and paste the exact post...

REMINDER - The Font2 Study is currently recruiting FSGS patients to see whether two new drugs, Humira and Galactose, can lower urine protein levels and help kidneys work better. The study is searching for 126 patients nationwide with FSGS. Patients ages 1-50 who are steroid resistant and have not responded to at least one other medicine for FSGS qualify. If you are interested, or want to learn more, contact Marilyn Hailperin at 866-NEPHCURE x25 or at mhailperin@nephcure.org.


I hope this helps someone!!
xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
MooseMom
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« Reply #1 on: August 15, 2011, 02:51:05 PM »
Thanks for posting this.  I'm waiting to see what progress will take place now that they seem to have found what actually causes FSGS.  I wonder if they will start looking to create a drug that reduces the level of suPAR in the blood or if they will focus on better techniques like plasmapheresis.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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