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Author Topic: Good thoughts/energy for anniversary  (Read 3671 times)
pagandialysis
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« on: July 20, 2011, 08:04:11 PM »
I am asking for some good thoughts/energy/prays for me tomorrow. My anniversary is coming up on Friday and after my last two treatments my blood pressure has dropped very low and I have felt horrible all week. I don't want to be like that on our anniversary after I have put her through so much this week. I plan on asking my tech to take of a little less if they could and I drank less then I normally would too.

Thanks.
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Kidney Transplant (December 31, 2014),
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AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
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st789
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« Reply #1 on: July 20, 2011, 08:30:20 PM »
 :bestwishes;
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MooseMom
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« Reply #2 on: July 20, 2011, 09:28:49 PM »
I hope your anniversary goes better than you expect.  I hope you are feeling well enough to celebrate heartily!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #3 on: July 20, 2011, 09:53:17 PM »
 :cuddle; 

Happy Anniversary...hope the BP gets straighthen out!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
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How about another decade of solid health?
Ang
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« Reply #4 on: July 21, 2011, 12:40:46 AM »
 :bestwishes;
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billybags
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« Reply #5 on: July 21, 2011, 05:55:24 AM »
Hope you have a good anniversary. Why is your blood pressure dropping, are they taking too much fluid off. Are you dehydrating.
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pagandialysis
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« Reply #6 on: July 21, 2011, 07:36:16 AM »
Quote from: billybags on July 21, 2011, 05:55:24 AM
Hope you have a good anniversary. Why is your blood pressure dropping, are they taking too much fluid off. Are you dehydrating.

I'm not 100% sure. I went in on Tuesday at 130kg and left at 126.5kg and I felt horrible the rest of that day and yesterday. Oddly enough I came in today at 126.1 so they aren't going to take anything off of me they said just do a rinse. So here is hoping I feel better today because I feel pretty good, not great, this morning!
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
cariad
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« Reply #7 on: July 21, 2011, 08:09:07 AM »
Best of luck, I have fingers crossed for you!

Happy anniversary, and many more!  :bestwishes;
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« Reply #8 on: July 21, 2011, 09:32:20 AM »
   :pray;    :thumbup;     :cheer:

Best to the Best!!!!
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okarol
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« Reply #9 on: July 21, 2011, 10:56:59 AM »
I hope you can feel ok and enjoy the day.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pagandialysis
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« Reply #10 on: July 21, 2011, 11:34:20 AM »
They are taking me off soon and I feel okay so I should be okay for tomorrow. We shall see what I feel like when I get home though. That's the true sign of how I will feel the next day.

 ;D
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Dining on Dialysis - www.diningondialysis.com
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Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
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« Reply #11 on: July 21, 2011, 12:14:24 PM »
I"m usually tired when I get home, but feel great the next day..

They never take off more than 3kg with me, because that's what I tell them to do.  The first thing I was told, after I was stable, of course, was that I am the boss.  They do what I tell them to do, because it is my body, and it was one of the few things in life that I have full say over.  If I only wanted to stay for 2 hours instead of 4, they have to take me off, although I've never actually done that.  I have made them do things they didn't want to, though..

Last week, when my arm was infiltrated, they wanted to stick me a third time.  I'm lucky to have 3 spots to needle. They blew one, they had one needle in, and they wanted to try for the third spot, and I said no.  Since it blew after the run had already started, and there was blood in the lines, they couldn't just switch the lines for the single needle setup.  They had to set up a whole new machine, which caused us all to be there an hour later, but I didn't care.

But anyway, this is way off the topic.. my point was, you know your body best.  Don't let them bully you into doing anything you don't want to do... hopefully you'll feel great tomorrow
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jbeany
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« Reply #12 on: July 21, 2011, 02:19:01 PM »
 :bestwishes;

Hope you two had a great day!
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« Reply #13 on: July 21, 2011, 03:32:42 PM »
 :bestwishes; Happy Anniversary hope that you and your special one have a wonderful night.



Edited: Fixed smiley error - okarol/admin
« Last Edit: July 22, 2011, 09:34:50 AM by okarol » Logged
pagandialysis
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« Reply #14 on: July 22, 2011, 09:28:55 AM »
I feel absolutely fine today!  :thx;
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
MooseMom
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« Reply #15 on: July 22, 2011, 09:30:45 AM »
Good thoughts/energy from IHD is effin' golden!! :clap;

Have a marvellous day!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #16 on: July 22, 2011, 11:51:51 AM »
Happy Anniversary!

♥
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okarol
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« Reply #17 on: July 22, 2011, 10:14:11 PM »
 :cheer: Hope it was a good day!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
pagandialysis
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« Reply #18 on: July 23, 2011, 09:17:23 AM »
It was a very good day!
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
kitkatz
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« Reply #19 on: July 23, 2011, 03:09:55 PM »
Happy Anniversary!  :yahoo; :yahoo; :bestwishes; :bestwishes;
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Take it one day, one hour, one minute, one second at a time.

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pagandialysis
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« Reply #20 on: July 23, 2011, 08:21:02 PM »
Thanks everyone!
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Dining on Dialysis - www.diningondialysis.com
-------------------------------------------------------------
Kidney Transplant (December 31, 2014),
Dialysis-Hemo (Started May 17, 2011. Ended December 29, 2014),
AV Fistula #2 (This one is a Basilic Transposition),
CKD (IgA Nephropathy) Stage 5,
Hypertension (Under Control)
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