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Dragonfly
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« on: June 18, 2011, 02:23:08 PM »
Here I go again, off to Dialysis,  had a great day, made dinner and had a nap, woke u played on the computer, diner dash On facebook. The had a little treat and now I go to ruin my day and a beautiful day it is outside. I hate this, I miss my freedom, I keep telling myself one day I will be free from the threat of the chair.  I will be able to do what ever I want at 7pm, on Tuesdays, Thursdays and Saturdays! Stay home and relax, enjoy cooking out or friendly get to-gethers and not have to leave. I am just crying and feeling sorry for myself today. Pay me no attention. Its nice to have this board to put my thoughts out there with.  :clap;
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Dragonflies and Butterflies and Dad and Mom

SLE - 11/17/09
Renal Failure - 11/17/09
Raynard's Syndrome - 11/17/09
Pulmonary Hypertension - 03/08
WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #1 on: June 18, 2011, 04:34:12 PM »
Feel sorry for yourself all you need to - I too am resenting the chair MWF from noon to 5 especially now that my son is out of school and the weather is so nice.  By the time my teenagers rolls out of bed I have to go for the whole afternoon.  BUT on T, TH, Sat and Sun we can spend lots of time at the campground were we are seasonal campers or hanging on the beaches of Lake Erie which is just 15 minutes north.  Hope your time passes quickly.  Make the most of your days off! :flower;
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jbeany
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Cattitude
« Reply #2 on: June 18, 2011, 07:04:58 PM »
"It's lifesaving...It's a medical miracle...It's blah blah blah....." 

Some days, it's just a pain in the ass and the arm at the same time!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: June 18, 2011, 07:33:13 PM »
You can say that again!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
lmunchkin
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"There Is No Place Like Home!"
« Reply #4 on: June 18, 2011, 09:35:08 PM »
Welcome to the World of Kidney Disease!  It just plain "bites".

lmunchkin      :puke;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #5 on: June 18, 2011, 10:09:25 PM »

that why I went to home hemo and I am doing it at night...so I can free up my days.. I love to garden , fish, camp and walk my dogs..   why not try to do home hemo....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
kitkatz
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« Reply #6 on: June 18, 2011, 11:15:01 PM »
This is why I like nocturnal, however it does still ruin a perfectly good day.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kamar55
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« Reply #7 on: June 19, 2011, 04:09:13 AM »
yes, D just plain sucks...any form...any day..any time....BUT I always think back to how I felt pre D when I was so, so sick and that sucked even more. Yes, I still feel crappy after D, but the following day is pretty decent and I can get things done....
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Want unconditional love? Want a friend for life? Adopt an animal from your local shelter. It's a win, win situation!!
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: June 19, 2011, 03:34:05 PM »
What about home dialysis or nocternal? Sorry that D sucks....I feel you on that!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
CHeatherS
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« Reply #9 on: June 19, 2011, 03:53:49 PM »
Yes, it's summer in Alaska and the daylight hours are wonderful (although it's been pretty cold).  Everyone is out late, mowing lawns and all kinds of stuff.  But I have to be in early, setting up for PD every night for a good 10 hours.  I am working on not complaining..... but yes, it's not a picnic, that's for sure.  At least I can be home.
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