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Author Topic: Hole in my fistula.... again  (Read 2831 times)
Rerun
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« on: May 22, 2011, 10:01:05 AM »

Crud!  I have noticed a spot on my fistula where there is a scab but it is thin and fragile.  It could blow.  I've had this before.  I have put a folded piece of gauze on it with silk tape.  I have emailed my vascular surgeon just in case.  I'm stressed.  I'll have them look at it at dialysis tonight.  They may not think it is safe to use. 

Well, it has been 2 years since I've had to have a fistula revision.  That is a pretty good run for me. 

This is like watching a ticking bomb!    :P
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aharris2
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« Reply #1 on: May 22, 2011, 10:21:54 AM »

Noticing this kind of a thing on a Sunday sucks. I am glad you have dialysis tonight so it an be assessed and watched. I hope you can dialyze!

Best wishes for an easy and quick resolution.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

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Rest in peace my dear brother...
HouseOfDialysis
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« Reply #2 on: May 22, 2011, 10:23:59 AM »

How often do fistulas need revising? Typically speaking.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
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Began CCPD on April 29th, 2011.
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Jean
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« Reply #3 on: May 22, 2011, 02:20:23 PM »

Best of luck on that ReRun. Must be a little bit scary for you. Hope it is all right.
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okarol
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« Reply #4 on: May 22, 2011, 03:00:42 PM »

Good thing you noticed it before it busted open - I hope it's easy to fix up - good luck!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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sullidog
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« Reply #5 on: May 22, 2011, 05:41:59 PM »

fistulas don't need a lot of revisions, however a graft needs more then a fistula, in my experience though it depends on the surgeon, the v surgeon I use to go to had to do one every month, while my new one did a major one and after 3 months it's still going strong!
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Sluff
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« Reply #6 on: May 22, 2011, 05:49:15 PM »

Dang, why does this happen? I know how you feel about this and I hope it can be repaired. ( without another complete revision)  :-* :grouphug;
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boswife
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« Reply #7 on: May 22, 2011, 09:14:13 PM »

Dang it and what the heck!!  i've never heard of such a thing.. Very scarry sounding and i wish you well with it.  I hope it's already solved!!!!!!!!!  Sending you my best...   :pray;
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im a california wife and cargiver to my hubby
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november 2010, patiently (ha!) waiting our turn for NxStage training
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Rerun
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Going through life tied to a chair!

« Reply #8 on: May 23, 2011, 10:21:14 AM »

Thanks you guys!    :grouphug;  Just having someone to talk to helps.

Dialysis went well and the nurse said it looks like a skin tare more than a hole.  So, I've made an appointment with my V. Surgeon today so he can just look at it and see what he thinks. 

I hope I just was stressed over nothing.....     :waving;
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« Reply #9 on: May 23, 2011, 06:00:46 PM »

I'm glad you're getting someone to have a proper look at it.  A story told by a girl on another discussion board:   She found, like a little blood blister on her fistula, she says, she showed it to the nurses who put a bandage on it and sent her home.  And on the Monday morning when she took the bandage off at home, she says it was like an explosion.  Literally burst open, with massive blood loss.  They rang the ambulance, towel after towel to mop up the blood, she woke up after surgry to have it repaired - woke up on dialysis the next day.  Very exciting.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kitkatz
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« Reply #10 on: May 26, 2011, 07:35:03 PM »

Good luck with it all, Rerun.
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Take it one day, one hour, one minute, one second at a time.

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okarol
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« Reply #11 on: June 05, 2011, 02:23:04 PM »


Good to know it doesn't appear to be serious, but it's worth the follow up.
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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