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Author Topic: Cankles and Water-logged feet :(  (Read 3864 times)
KarenInWA
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« on: April 29, 2011, 10:34:49 AM »
Okay, so I am new to D, and my neph has not yet put me on any fluid restrictions yet.  I am not going crazy drinking lots of water and juice, but I am not going crazy restricting it, either.  I am finding my feet and ankles get so waterlogged I can only wear certain shoes on D days!  Not happy about this!  I still pee, but I am noticing a decline in the amount.  How much longer do I have to bear water weight on my feet and (c)ankles?  It feels weird to climb stairs when I get like this!

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
billybags
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« Reply #1 on: April 29, 2011, 10:38:20 AM »
KarenInWA, Sounds like you are drinking too much and /or they are not pulling enough off you on D days. Try to cut down your fluid intake a bit.
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tyefly
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« Reply #2 on: April 29, 2011, 10:44:55 AM »
keep taking off fluid every D session.... over time you will get that water off your feet..... when I first start D  I had alot of water on my feet and ankles.....  couldnt wear shoes.....  but over a few weeks  my feet looked normal again.....  it takes time to get all that fluid off from all those places..... Now  I never get fluid around my feet...  its nice to wear shoes......   
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

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RichardMEL
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« Reply #3 on: April 29, 2011, 02:06:50 PM »
I'm  going  to  go  with  a  mixture  of  the  above.  qhile  your  bod  clearoy  has  excess  fluid  spread  around  it  the  D  us  slowly  takkng  off  yo  cann  aid  the  process  yourself  by  reducing  your  fluid  intake  -  specally  on  weekends  when  you  have  an  extra  day  between  sessions. 

Might  also  want  to  discuss  with  neph  something  like  lasix  to  help  remove  that  extra  a  bit  faster  and/or  a  crit  lune/BVM  during  d  to  try  and  establish  just  how  wet  you  are  to  try  to  figure  out  a more  accurate  dry  weight  to  aim  for  - keeping  in  mind  to  not  try  to  do  too  much  at  once  guven  previous  cramping  and  potential  changes  in  real  weight  due    to  changed  appetite  patterns.

Good  luck.  :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

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Bill Peckham
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« Reply #4 on: April 29, 2011, 05:45:20 PM »
How's your blood pressure? And are you watching you sodium?
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Chris
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« Reply #5 on: April 29, 2011, 09:10:23 PM »
As with Bill's thought, are you putting restrictions on what types of food you eat? Your fluid restrictionn maybe different from the one I had, but I think I was allowed 8 or 12 oz of fluid a day total.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
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Stoday
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« Reply #6 on: April 30, 2011, 05:30:42 PM »
Just before I started HD my feet were so swollen I stopped wearing socks because otherwise I would not have got my shoe on. Even so, I had to use a shoe horn. My odema problem had persisted for many years.

Delightfully, after only a dozen or so HD sessions I had lost all the swelling. Still don't wear socks. Got too used to not wearing them.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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