Hey everyone. I am so frustrated!! I have been on dialysis almost 20 years now (between 4 kidney transplants) and I am only 31. Anyway, starting in 2004, I have been losing my hearing on and off (mostly my hearing was fine) for hours, days, and sometimes weeks at a time. I had my hearing checked by a specialist as well as my kidney doctors and they all seem to think it is from pressure changes on dialysis.
Anyway, my hearing has been gone for the last 4 months (everyday whether I am dialyzing or not). And by gone I mean sometimes it is totally gone where I hear nothing and the other times I can hear some volume (so I know people are speaking), but the words get muffled (and so I don't know what they are saying). And speaking louder doesn't help because the words are still muffled.
I was just wondering if anyone else has experienced this (for extended periods of time) because I have heard that other patients do experience some hearing issues while on the machine, but nobody seems to know of anyone who has experienced it for extended periods of time.
If anyone has exprienced (or knows what I'm talking about), please let me know. I feel so alone and frustrated. My kidney "team" is no help as they just chalk it up to dialysis (like they do with any other problem I have).