I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
November 24, 2024, 07:52:38 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Depressed - Anniversary		 0 Members and 1 Guest are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Depressed - Anniversary  (Read 2401 times)
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955
« on: March 17, 2011, 02:18:35 PM »
Today is my transplant anniversary. 13 years. It used to be an occasion for a party but now I'm on PD and it's a little depressing. I'm sure there are others here post transplant who know how I feel. I'm back on the list but it will be years...
Logged
carol1987
Full Member
***
Offline Offline

Gender: Female
Posts: 397
« Reply #1 on: March 17, 2011, 03:48:44 PM »
 :cuddle; so sorry.....
Logged
Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #2 on: March 17, 2011, 03:52:27 PM »
Oh gosh...I am so sorry to hear that.  There must be few things more demoralizing than to have enjoyed life without dialysis and then have to go back on it.  I don't even want to imagine.  I really hope you get another chance very soon.  Life is really hard on the list. :cuddle;
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
noahvale
Guest
« Reply #3 on: March 17, 2011, 03:57:01 PM »
**
« Last Edit: September 16, 2015, 05:39:46 AM by noahvale » Logged
MooseMom
Member for Life
******
Offline Offline

Gender: Female
Posts: 11325
« Reply #4 on: March 17, 2011, 04:18:44 PM »
@Noahvale and jeannea, do you get extra "points" on the list for having already had a tranplant?  Wouldn't that mean you might get further up the list quicker?  I sure hope so!
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
noahvale
Guest
« Reply #5 on: March 17, 2011, 04:31:42 PM »
**
« Last Edit: September 16, 2015, 05:40:08 AM by noahvale » Logged
willowtreewren
Member for Life
******
Offline Offline

Gender: Female
Posts: 6928


My two beautifull granddaughters

WWW
« Reply #6 on: March 17, 2011, 04:34:35 PM »
Hugs to both of you.  :grouphug;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955
« Reply #7 on: March 17, 2011, 05:37:40 PM »
Thanks everyone for the support. Noahvale - at least I didn't start dialysis on my anniversary.

I don't know about the points. I'll take what I can get. My antibodies are at 97% because of the previous transplant and 4 units of blood when I was bleeding out. I hope to get treatments soon to bring that level down.
Logged
billmoria
Full Member
***
Offline Offline

Gender: Male
Posts: 133


Living life to my max
« Reply #8 on: March 17, 2011, 07:29:42 PM »
I never remember the dates of bad things. You got 13 good years - hope you get more.     :2thumbsup;
Logged
WMoriarty
noahvale
Guest
« Reply #9 on: March 17, 2011, 07:44:31 PM »
**
« Last Edit: September 16, 2015, 05:38:24 AM by noahvale » Logged
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #10 on: March 17, 2011, 09:36:20 PM »
Sorry to hear this. My daughter's surgeon was discussing the new idea of removing the transplanted kidney that no longer works - in order to bring down the PRA. Once the foreign tissue is gone, some of the antibodies go down. Has anyone heard of this?
There's also desensitization treatments that have helped some of our members to get transplants. Not all centers do it, but it's worth asking about. My friend just got her transplant from her non-matching donor on Feb 4 - it's her 4th transplant and her PRA was 100%!
Even having a non-matching, but willing, living donor - some patients have gotten lucky in paired swaps or chains, where your tissue is put into the system and compared to donors at over 30 participating hospitals. They've already matched a few patients who were over 97% PRA.
I hope something works out for you both.  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rsudock
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1351


will of the healthy makes up the fate of the sick.
« Reply #11 on: March 17, 2011, 09:50:27 PM »
sorry to hear this I felt the same way too when my kidneyversary came up in December...hang tough!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955
« Reply #12 on: March 17, 2011, 10:12:01 PM »
I don't have a protocol yet for the antibodies. I was waiting for some insurance stuff to get worked out. But they could do IV Ig or plasmapharesis. I'm with Hershey Med Center in PA. They refused to make me any promises or plans til I had medicare all in place.
Logged
*kana*
Full Member
***
Offline Offline

Gender: Female
Posts: 360
« Reply #13 on: March 20, 2011, 06:17:52 AM »
This is kind of why I don't want a transplant.  I can't imagine going through renal failure twice.  The emotions the sickness the stress......ugh! 

I also am one that never remembers bad dates.  You were lucky to get an extra 13 years and I wish you many more. 
Logged
PD started 09/08
PKD kidneys removed 06/17/09

Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

Hemo 06/2009-08/2009

Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
Pages: [1] Go Up Print 
« previous next »
 
Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!