peripheral naphtha

[sutphendriver]

Have experienced debilitating pain in my feet the last 3 days.  I had to come home from work and go to the ER.  They shot me with morphine and gave me a script for Oxycotton.  Neph sent me for a vascular ultrasound of my feet, still waiting for the vascular surgeon to read them.  The drugs have knocked the pain down to where my feet are just numb....along with the rest of me.  Have a bad case of the shakes from the meds.  Anyone else have and conquer this?  I've read about it at Mayo Clinic.com, but never found the "cure".  Will a transplant fix it up, I'm sitting at the top of my list so it shouldn't be long.

[boswife]

Wow, no experience here with that but i sure hope you can find out and relieve your mind of it. (and your feet from the pain of it without continued drugs )  Hope you get answers soon!!!

[paris]

I have no answers, but I am sorry you are in such pain.  Let us know what they say is the cause and what to do about it.

[noahvale]

^^

[sutphendriver]

I ment neuropathy, the spell check gremilin got me...sorry.  No results yet, pain has subsided with meds, but is definatlly not a cure.  I cannot use pain killers while i am working, so i guess its time to suck it up and deal with it.  I'm prett lucky so far, my only complications to my kidney failure is this and PHTD which is currently running around 1300 so a parathyrodectomy is probably in my future.  So life is pretty good....Happy Valentines Day to all....I think i'll reread the sex thread for Valentines Day 

[monrein]

My hands and feet are painful too, sometimes more than others.  I got custom orthotics for my feet, pretty expensive but they've helped a lot.  I see a rheumatologist and she's suggested unattractive options such as removing a small bone in my right hand thumb joint (I'm holding off on that).  I take fish oil and a collagen supplement called Rheumashield but have no clue if they help or not.  I exercise a lot and don't take anything for pain.

Good luck.  I never experienced this stuff after my first transplant but overall I'm feeling really good so I'll live with this,

[jeannea]

I had peripheral neuropathy as a side effect of Prograf taken for my transplant. They gave me Neurontin which helped some with the pain but mostly I learned to live with it. I didn't know it happened before transplant too. For me it has subsided since I no longer take Prograf and I'm back on dialysis. I understand there are other medicines similar to Neurontin but I don't know the names. I hope your doctor can help. That pain really hurts.

[monrein]

I attribute this also to Prograf since that's the only new thing this time around.  With my first trx I was on Cyclosporine.  We must learn to do our best and live with the rest.  Hmm... that's true for everyone I guess.