Clinical Trials: Autosomal Dominant Polycystic Kidney Disease (ADPKD) Pain Study

[okarol]

Clinical Trials: Autosomal Dominant Polycystic Kidney Disease (ADPKD) Pain Study

This study is currently recruiting participants.
Verified by Mayo Clinic, November 2010

Further study details as provided by Mayo Clinic:

Primary Outcome Measures:
Improvement in pain control and quality of life [ Time Frame: 2 yrs ] [ Designated as safety issue: Yes ]

Secondary Outcome Measures:
Changes in urine biomarkers compared to pre-operation values within patients will be compared. Changes in kidney volume, kidney cyst volume, and kidney blood flow before and after the operation will be studied. [ Time Frame: 3 years ] [ Designated as safety issue: No ]

more info: http://clinicaltrials.gov/ct2/show/NCT00571909?term=pkd&state1=NA:US:MN&rank=7

[paul.karen]

This is crazy.  They want people to be guinea pigs which is fine it happens often.  But what is crazy is usually people get paid a small amount of money and for transportation ect ect.  This study says that you the person being used for there tests must cover the cost of there own operation and after care.

My kidneys (pkd) are very painful and i might do such a study if one were close to me.  But to cover my own expenses is crazy for a procedure that isnt proven.