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Author Topic: Woman with Alport's Syndrome?  (Read 1611 times)
RainingRoses
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« on: July 02, 2010, 07:30:40 AM »
Any other women here with Alport's?  Want to share how you were diagnosed?
:) Pete
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Finally Diagnosed 6/2001 Alport's Syndrome
CAPD 10/ 2006
Listed on UNOS 7/2007
CCPD  10/2007
Peritonitis & Hemo 10/2009
CCPD 2/2010
lola
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« Reply #1 on: July 09, 2010, 09:00:08 AM »
Our daughter Dani has "active" alports, she was diagnosed at age 5
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RainingRoses
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« Reply #2 on: July 10, 2010, 05:30:49 PM »
That's interesting.  My mom was never diagnosed because "women cannot have Alport's."  I was finally diagnosed after my brother was diagnosed.
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Finally Diagnosed 6/2001 Alport's Syndrome
CAPD 10/ 2006
Listed on UNOS 7/2007
CCPD  10/2007
Peritonitis & Hemo 10/2009
CCPD 2/2010
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