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dtandukar
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« on: July 04, 2010, 09:58:52 AM »

hello, what could be the good activities for dialysis visitors who have to wait outside until the dialysis is completed? I have to wait for 4 hours outside the dialysis room until my dad's dialysis is over - i spent most of my time reading. If the time of all the visitors could be utilised that would be really good.

Best regards,
Deependra
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Pam
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« Reply #1 on: July 05, 2010, 08:35:47 PM »

Ask if they have wireless internet. My center has it and I can use my laptop while I'm in the chair and I've seen a few visitors using them in the waiting room. My regular laptop is too big to handle with 1 hand so I bought one of the mini netbooks and it sure helps pass the time.

Pam
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RichardMEL
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« Reply #2 on: July 06, 2010, 07:17:06 AM »

Do you mean to say you are not allowed in the treatment area at ALL as a visitor/relative of a patient??? yikes!

Is there any reason you feel you have to wait out there for the entire 4 hours? Could you not head out to a local coffee place or somewhere at least more comfortable to read? Go for a walk or head to the gym or something to get some exercise?

At my unit, visitors/relatives are allowed in generally except when their person is coming on or off - and even then some of the "old hands" are allowed to stay (I am thinking of one lady whoose husband has been on D for 20 years - she comes and stays for his entire 4 hour run - she doesn't do much and indeed winds up doing stuff for bunches of other patients?!! a lovely woman). However most folks come, stay for a little bit, go out and do stuff - shopping, walking, heck one lady even goes and has a sleep in the car(?!) before she has to drive hubby home.

I think if it was me, and I was not even allowed in with the person I would leave the unit area until it was time to pick them up. Hospitals/Dialysis units are hardly the most fun places out there. We have a park over the road - if it was up to me I'd go sit under a tree and zone out......
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Red from Canada
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« Reply #3 on: July 06, 2010, 09:22:30 AM »

My husband comes with me and we have a DVD player and get films from our Library and watch two movies each session.  It is our movie night.
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KICKSTART
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In da House.

« Reply #4 on: July 06, 2010, 03:20:50 PM »

We are allowed people in ..within reason. Is there not a cafe in the hospital you could go too?  Otherwise is the drive home too long , to go and then come back ? Do you mind.. but why do you have to stay?
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
natnnnat
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« Reply #5 on: July 06, 2010, 07:55:21 PM »

I would knit.  I'm an obsessive knitter.  It would be an excuse to knit for four hours and suck down tea in the nearest cafe.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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