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Author Topic: What becomes of a fistula after transplant?  (Read 9073 times)
chiefsfan301
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« on: March 30, 2010, 07:31:07 PM »

I have a left upper arm fistula and was just wondering what becomes of a fistula after a transplant?  My fistula has only been used for 5 months and I am expecting a transplant within the next 10 months, currently my fistula has signs of two aneurysm's starting to pop up.  Will the aneurysm's continue to grow after transplant?
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IGA 1994
Fistula August 2009
Dialysis October 2009
Approved for Transplant January 2010
Turned down ECK kidney January 2011
kellyt
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« Reply #1 on: March 30, 2010, 08:40:17 PM »

Mine stopped working the day after I transplanted.  My doctor said that happens sometimes, but not always that soon.  Mine was in my upper arm, too, but I never used it.

Congratulations on your upcoming transplant!  Plenty of time to plan and prepare!    :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
jennyc
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« Reply #2 on: March 30, 2010, 09:13:19 PM »

they told me mine would just stay until it failed on its own. They leave it incase they need access after the TX becuase it doesn't always work straight away. Then after that i think they don't really want to do another procedure when it isn't necessary. Not sure about the aneurysm's though, mine never actually got used. I have a lump that appeared as soon as the fistula matured and that has stayed but nothing new ever cropped up and it hasn't grown.
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2003 January - acute renal failure
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Brianna!
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« Reply #3 on: March 31, 2010, 12:27:25 AM »

I heard that the fistula gets less noticeable once it isn't used anymore. I think the aneurysms go away. And the bumps from it being used, get small and sometimes go flat. I think it if clots after transplant the fistula bumps go away completely. This is just what I heard. I'm kinda wondering the same thing.
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monrein
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« Reply #4 on: March 31, 2010, 05:46:28 AM »

The one in my forearm clotted off a year after my first transplant and is just a totally flat scar now...no big deal at all.  My second in the upper arm is still going strong a year later but I have no aneurysms.  I don't know if it will clot off or not but so far no signs of going anywhere.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
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lola
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« Reply #5 on: March 31, 2010, 06:47:43 AM »

2 of Otto's brothers have had there's since 1980 and they still work!!!!!!
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Stacy Without An E
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« Reply #6 on: April 01, 2010, 11:01:20 AM »

My original 1982 fistula stopped working about two years after my first kidney transplant.  The only reason I noticed it is because there was some discomfort and dull pain for about two or three days.  They tend to clot off on their own if they're not used.

For those of you scoring at home, in my lifetime that's two fistulas, two kidney transplants, one failed PD catheter, and one graft.

A couple more surgeries and I believe I'll officially be bionic.
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Stacy Without An E

1st Kidney Transplant: May 1983
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sullidog
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« Reply #7 on: April 01, 2010, 05:32:10 PM »

My friends clotted off after transplant, it got bairly noticeable and you can't even feel it anymore, meaning you can't feel to tell anything was even there.
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
*kana*
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« Reply #8 on: April 13, 2010, 05:14:50 PM »

MY vascular surgeon told me that they can go in a tie them off.  I say leave them alone!
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Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09

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Chris
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« Reply #9 on: April 13, 2010, 11:35:06 PM »

When I had my transplant at the end of 2000 this was one of the questions I had  at their transplant seminar. At the time before mine clotted off, I was told nothing would be done in order to avoid any unnecessary risk. My graft in my upper arm is still going, but wish the would remove it, it get's itchy. After 9 years, I don't think they would do anything if their protocol has changed.
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Diabetes -  age 7

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Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
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