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Author Topic: I did something very stupid  (Read 1929 times)
Stoday
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« on: April 08, 2010, 07:39:21 AM »

The good news — I'm typing this on the Linica, sailing off the coast of Italy. I thought I'd take a weeks cruise before I go on dialysis. That turned out to be a silly idea. I messed up the times I took my medications and I've been bad ever since the cruise started.

I would have liked to take the trip to Rome, but couldn't. Also to Pompeii, but again had to stay in my cabin. Oh dear!

The only good thing is that when I am hating dialysis I shall remember this and remember that I hate NOT dialysing even more.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
Tracy
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Loved the Movie!

« Reply #1 on: April 08, 2010, 09:00:59 AM »

That is so interesting.  I was thinking, I want to take a little trip before I have to start D.  So, should I rethink this?  It is almost like a Bachelorette party...one last hoorah.
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9/1990 Found out I have Type 1 Diabetes
7/2008 Told I have GFR 30
2/2009 Kidney/Pancreas Transplant
5 days later, both removed due to massive rejection
Back on List
2/26/10 Fistula placed
3/11/10 Told GFR 9
5/14/10 Started in center Hemo
Waiting on another Transplant
MooseMom
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« Reply #2 on: April 08, 2010, 09:34:20 AM »

My mom and other relatives want me to come out to California to visit next month, but I'm really in two minds about it.  I'm feeling OK at the moment, but I don't want to tempt fate.

Stoday, anything that makes you feel good about being on dialysis is worth it, in my book.  This trip to Italy might end up being more important to your psychological well being than you'd ever imagine.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Jean
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« Reply #3 on: April 08, 2010, 11:20:18 AM »

Kind of off topic Moose Mom, but can you take your trip to Ca in June? That way you could attend our IHD mini meet on the 6th.
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One day at a time, thats all I can do.
galvo
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« Reply #4 on: April 08, 2010, 04:57:28 PM »

Hello sailor!
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Galvo
Stoday
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« Reply #5 on: April 10, 2010, 01:15:46 AM »

Hey — I'm OK now. Took 2 or 3 days to get over the change and start feeling better.

Tracy — be sure to give yourself a couple of days to get over the travel.

Now heading for the Balerics ETA 3pm this afternoon.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
paris
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« Reply #6 on: April 10, 2010, 11:12:32 AM »

Stoday, the trip sounds incredible, but I am sorry your not feeling great.   Hopefully, the rest of the cruise goes well and you enjoy every minute.

Tracy, never give up an opportunity to travel, especially now.  I am pre and planning adventures keeps me going. I don't climb mountains! And we adjust what we do now. I just don't want to look back and say "I wish I would have---".    So, where are you going and what are you going to do?   We want details  LOL

Stoday------    :pics;    Share your adventure with us!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Stoday
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« Reply #7 on: April 11, 2010, 01:02:56 PM »

Still ups and downs I fear.

Went ashore in Palma, Majorca and found a super restaurant. Had a genuine Tornedos Rossini for the 1st time in 20 years. Made quite a pig of myself. Paid for it that night though. Felt sick all night. Only just got right again today.

Last day tomorrow, when we dock in Genoa. Then a transfer to Milan and a flight to London. I'll be knackered when I get home.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
kellyt
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« Reply #8 on: April 11, 2010, 02:21:48 PM »

My husband and I went on a cruise in June 2008 thinking that when I get back I'd either be transplanting or starting dialysis, as we were waiting for the results of my husband (donor testing).  My nephrologist questioned me multiple times about the cruise saying "What if you get sick and really need to start dialysis?  Start vomiting?  etc."   Although we slept pretty much the entire time, we went anyway.  They ended up denying my husband as my donor, but luckily I didn't have to start dialysis yet.

In late Sept. 2008 when I received the news that they had accepted my sis-in-law to donate (we chose Nov. 5th), I had already made plans to the IHD Meet and Greet in Las Vegas.  Once again, my nephrologist was asking questions.  "What happens if you need to start dialysis before you get your kidney?"  yadda yadda.  I assured I would be fine and I was (thankfully).  THere is always that chance and you don't want to get sick.  Keep in mind on a cruise you are sometimes in confined spaces with a lot of strangers and worse, children.  Take extra precautions and watch what you eat.  I stuck to the pizza and punch.    :rofl;  Not the best choice....  ;D
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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