Anyone here have lupus as well?

ok,
Here is my situation. At the age of 16 I was diagnosed with lupus. I have pretty much have felt great until about last September. THis is even with dialysis. I started dialysis almost 3 years ago. My dialysis labs are great, but my body hurts. I am soo tired, that there are just days that i can even keep my eyes open, my legs hurt when i move them much. My arms and shoulders and sore and just feel really weak. I also get out of breath really easily, and I am not hypertensive (my bp run normal to low side), nor do I have fluid on. I am just so exhausted. Witin the last year I can count getting unexplained fevers 3 times for no reason at all.

So today I go and see my rheumatologist. He didnt know what is wrong iwth me. He claims that lupus is really inactive when you are on dialysis?!

I dont know what to do. My Kt/v is above a 2.0, and that is without doing a midday, and now i am doing a midday regularly, and i still feel this way.
Does anyone else feel this way? Or what should I do?
Lisa