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Dialysis: General Discussion
Can you beleive.....I CAN'T WAIT" to start dialysis!!!
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Topic: Can you beleive.....I CAN'T WAIT" to start dialysis!!! (Read 4684 times)
Goofy
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Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
on:
November 23, 2009, 12:43:20 PM »
Now you are all going to think I'm nuts but I actually can't wait to start dialysis!! I can't take it anymore. I feel so run down, my mind wants to do stuff but my body just won't let it.
Even through my brain wants’ me to do stuff, I am having the worst time with memory and processing information when people are speaking to me. I just feel like I'm off in another world. When I speak, I sometimes say a few words and then can't remember what I was going to say. I know people say they do that all the time, but this is really different!
I have really come a long way from when I first came here. I'm very happy for all the support that "almost" everyone has given me. Sorry to put you through that but I think the majority of you have been there yourself.
Even though it took me this long to get this far, I still stand by my decision for holding out until "I" was ready. I knew I would not let myself get deathly ill but everyone did scare me into thinking that what if all of a sudden I got sick. But now I "feel" that the time has come and I still can't believe I'm looking forward to it. I JUST WANT TO BE NORMAL AGAIN!!!!!
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #1 on:
November 23, 2009, 12:49:06 PM »
That's great Goofy. You sure have come a long way!
I hope it helps you feel more like yourself.
I have memory lapses and spaced-out days and I am not ESRD - LOL - no hope for me!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #2 on:
November 23, 2009, 01:41:54 PM »
We'll all be with you on the 30th Goofy. So glad you're in the right space now - and you will feel better soon, and things will seem so much better then!
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
galvo
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
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Reply #3 on:
November 23, 2009, 01:42:49 PM »
Good on ya!
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Galvo
jbeany
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Cattitude
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #4 on:
November 23, 2009, 01:46:08 PM »
Good for you for facing your fears! The first couple of weeks will be tough, but after you get into the groove, you will have more energy and mental clarity - especially on non-dialysis days.
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #5 on:
November 23, 2009, 01:49:13 PM »
Goofy's doing Pd - no 'non dialysis days' for her! But definitely the feeling better bit, and no fluid restrictions yay.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
looneytunes
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Wishin' I was Fishin'
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #6 on:
November 23, 2009, 04:34:16 PM »
Good for you Goofy...I'll be thinking of you and wishing you a "feel better" wish!
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"The key to being patient is having something to do in the meantime" AU
Malibu
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #7 on:
November 23, 2009, 05:09:51 PM »
HEY Looneytunes!!! Howdy to you!
Goofy I am proud of you. I know exactly what you mean too because my husband says he feels just like you do. He is starting dialysis on the 30th as well.
Here's to better days for you!
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willowtreewren
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My two beautifull granddaughters
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #8 on:
November 23, 2009, 05:22:54 PM »
So glad that you are going for it, Goofy.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011.
Rerun
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Going through life tied to a chair!
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #9 on:
November 23, 2009, 05:51:15 PM »
Let us know when you start.
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Melissa
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #10 on:
November 23, 2009, 09:44:16 PM »
Congratulations (?!) Goofy....I am so happy you are starting, and that the time feels right to you. You are going to feel so much better!!! Good luck!
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Des
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #11 on:
November 23, 2009, 10:07:12 PM »
Yeah! Yeah! You go girl!!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
jdkaran
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #12 on:
November 23, 2009, 10:36:05 PM »
In a very short while you will feel way better
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Each moment is precious....Don't waste them !!!!
del
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del and willowtreewren meet
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #13 on:
November 24, 2009, 11:47:49 AM »
So glad you are coming to terms with it goofy. The first couple of weeks might be tough but when you get into the routine and start to feel better you will be so glad you started.
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Don't take your organs to heaven. Heaven knows we need them here.
girliekick
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #14 on:
November 25, 2009, 01:30:13 AM »
congrats I know there is a peace with in u now that a start date has been set. I tell my self that the illness and each treatment option comes w its own personal set of symptoms. After ur adjustment period...(everyone is different) u will feel better. U r on my mind on the 30th and the coming weeks.
Always here for U
girl
«
Last Edit: November 25, 2009, 05:08:29 AM by girliekick
»
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
billybags
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #15 on:
November 25, 2009, 03:39:54 AM »
Goofy, It's took you a long while, you will be fine, don't worry about it. Ok its scary to start with but you will soon get into the swing.
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renalpenguin
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #16 on:
November 25, 2009, 07:08:07 AM »
I can't wait either! My GFR is 18... and I'm already feeling sick (although I have pretty good days still, but overall I know I'm getting worse). Of course, I'm hoping to wait until after Christmas (it's hectic enough already). But you have to do what you have to do- I'll start before Christmas if I need to (and who knows- maybe my GFR will hold until my living donor transplant... OK maybe not, but I love wishful thinking!)
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August 2007- Diagnosed with nephrotic syndrome
September 2007- Kidney Biopsy found FSGS
December 15, 2009- Transplant Evaluation
January 7, 2010- I'm on the list!
February 4, 2010- Fistula and PD Catheter Surgery
March 8, 2010- Begin CCPD; My cousin will be my donor in June!
June 22, 2010- I got a kidney from my awesome cousin!
"Trust in the Lord with all your heart. Lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight." Proverbs 3:5-6
billybags
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #17 on:
November 25, 2009, 10:48:10 AM »
renalpenguin, your GFR sounds quite good as things go. My husbands was down to 5 before he went on to CAPD.You and your doc will know when it is time. Think lucky.
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kimcanada
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Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #18 on:
November 25, 2009, 12:24:25 PM »
The year before I started Dialysis, was the worst in my life. I gained a ton of weight, I had NO energy, my breath stunk, I had a million scabs from scratching myself half crazy. I forgot conversations instantly. I never had sex. My hair even sucked! So I am with you goofy, dialysis sucks, but being that suck sucks more... good luck bud, you will be fine and you have all of our ears and eyes to tell you are not feeling so fine
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #19 on:
December 13, 2009, 09:39:57 AM »
Hi Goofy,
How are you feeling?
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
Goofy
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Posts: 229
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #20 on:
December 14, 2009, 07:52:59 AM »
I'm doing great!! I can't beleive how "uncomplicated" PD is. I'm very lucky right now because I am able to only do 8 hours. If I end up doing 10, I won't be very happy but at least I accept it now.
I can't say enough how glad I am that I held out like I did. I finaly got to the the "place" where I reaized it was time. If I hadn't waited until I was ready, I really think I would have resented the fact that I have to d it. Thanks for asking!!
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okarol
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Photo is Jenna - after Disneyland - 1988
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #21 on:
December 14, 2009, 09:06:09 AM »
Great!!
Logged
Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
HubbysPartner
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Our first New's Year's together - A new beginning
Re: Can you beleive.....I CAN'T WAIT" to start dialysis!!!
«
Reply #22 on:
December 14, 2009, 09:31:51 AM »
That's great Goofy, I know you will start to feel much better soon and you will be glad you got started.
Logged
Caregiver to husband, Lou, diagnosed 2/2008
4/2009 - Fistula
10/2009 - Started NxStage training
112009 - Finished training; at home with nxstage
Our family - husband, Lou; me, Marge; sons, Marc & Keith; daughter, Liz
Be still and know that I am God. - Psalm 46:10
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